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NICHCY: National Dissemination Center for Children with Disabilitites

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Cornelia de Lange Syndrome USA Foundation (CdLS-USA)

Cornelia de Lange Syndrome (CdLS-USA) Foundation increases awareness, encourages accurate and early diagnosis, and enables families and professionals to make responsible decisions about planning for present and future care of children with CdLS. It serves as a support system for children affected by CdLS and their families. Support for research continues to be a focus of CdLS-USA. CdLS also hosts an online "ask-the doctor" service provided through their Scientific Advisory Council (SAC). CdLS publishes pamphlets and a bimonthly newsletter, "Reaching Out."
http://www.cdlsusa.org

Disabled and Alone/Life Services for the Handicapped, Inc. (DALSH)

Disabled and Alone/Life Services for the Handicapped, Inc. (DALSH) works to assure a safe, caring world for persons with disabilities after the death of the last caregiver (usually a parent). They publish Parents' Planning Journal, A "life Plan," which helps parents and relatives of a person with a disability plan for when they will no longer be here. They provide direct services recorded in the "life plan"; and advise parents, relatives, attorneys, and financial planners about future care planning.  They offer educational programs about "life planning" for a person with a disability. To enroll in the program, families pay a one-time membership fee to begin the planning process. After that, a participating family chooses from one of the service plans described in the prospectus, "After We're Gone." Information is available upon request.
http://www.disabledandalone.org

Special Needs Alliance

The Special Needs Alliance (SNA) is a national, nonprofit organization of attorneys experienced in the practice of disability, elder, and public benefits law. SNA refers families and individuals with disabilities to nearby attorneys.
http://www.specialneedsalliance.com/

Special Needs Answers

This website can help families locate an attorney who speciazlizes in special needs planning and trusts in their state.
http://www.specialneedsanswers.com/professionals

Technical Assistance on Transition and the Rehabilitation Act (TATRA)

PACER's Technical Assistance on Transition and the Rehabilitation Act (TATRA) project was funded by the Rehabilitation Services Administration (RSA) to provide technical assistance to six Rehabilitation Act Parent Training Projects. These projects are part of RSA initiatives to inform individuals with disabilities and their families about Rehabilitation Act and vocational rehabilitation and independent living services, to enable them to improve and expand employment goals and outcomes. TATRA offers a variety of services that help the RSA parent training projects achieve their goals. These services include individual technical assistance plans, ongoing information and referral, an annual conference, teleconferencing, and collaborative activities with other organizations such as the National Center on Secondary Education and Transition (NCSET) and the National Council on Independent Living (NCIL).
http://www.pacer.org/tatra/


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NICHCY thanks our Project Officer, Dr. Judy L. Shanley, at the Office of Special Education Programs (OSEP), U.S. Department of Education.

Publication of this Web resource page is made possible through Cooperative Agreement #H326N030003 between the Academy for Educational Development and the Office of Special Education Programs of the U.S. Department of Education. The contents of this document do not necessarily reflect the views or policies of the Department of Education, nor does mention of trade names, commercial products, or organizations imply endorsement by the U.S. Government.

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