A Web resource page of the National Dissemination
Center for Children with Disabilities
NICHCY eNews Foundations:
Early Intervention
Launched October 2005
Approx. 19 pages when printed
NICHCY is pleased to offer you eNews, a news service that brings you
resources and information that are relevant to your interests and concerns.
All are welcome to sign up for eNews and tell us what type of info
they'd like to receive. Because we sift through mountains of resources daily
at NICHCY, we are in an excellent position to let our users know when we run
across something of interest to them. (Don't know what we're talking about here?
Visit our eNews sign-up page,
and read all about it.)
This eNews Foundations page offers the same starting point to everyone
who signed up on eNews to receive information about Effective
Practices for Delivering Early Intervention Services. It doesn't matter
if you signed up to receive this info on Day 1 or Day 366 of our service. You'll
begin to receive this info through our periodic eNews mailings on the
subject---AND, in the meantime, this page will connect you with the resources
and info we've already shared with others.
Babies and young children need love and care---and sometimes more. For very
young children with disabilities, or at risk of disability, it's important to
start at the very beginning to help them develop all the skills they will need
to learn. Early intervention is about getting help at the beginning.
What is Early Intervention?
If you're asking the question "what's effective in delivering early intervention
services?" then you probably don't need an intro to what early intervention is.
But we don't like to presume what anyone might already know (or not know) when
they come to these Foundations pages. So we'll start with the basics.
Skip this section if you already know them.
- EI: What is it? How to find it.
www.nichcy.org/pubs/parent/pa2txt.htm
Start with NICHCY's Finding Help for Young Children with Disabilities
(Birth-5). Early intervention services are explained, as well as how
to access them for infants and toddlers. This publication will also connect
you with many of the major organizations who can tell you more.
- What's the law have to say?
www.nectac.org/idea/idea.asp
The legal basis for early intervention services comes from the Individuals
with Disabilities Education Act (IDEA). The link above takes you to the National
Early Childhood Technical Assistance Center's (NECTAC) pages on the IDEA's
early childhood provisions.
- The lowdown on "service coordination."
www.nectac.org/topics/scoord/scoord.asp
"Early intervention service coordination is a mandated service under
Part C of IDEA, provided at no cost to families. Service coordination is defined
as an active, ongoing process that assists and enables families to access
services and assures their rights and procedural safeguards." So begins
the service coordination page at NECTAC, where you'll find IDEA's definition
of service coordination, how different states are addressing service coordination,
training resources, and links to the Research and Training Center on Service
Coordination (described more below) and other resources on this topic.
- Go straight to the RTC, if you like.
www.uconnucedd.org/Projects/RTC/Default.htm
If the above item interested you, and in particular if the availability of
the Research and Training Center on Service Coordination interested you, we
provide the link to the RTC to speed you on your way there. (But make sure
to visit NECTAC, who has boatloads of information on early intervention policy
and practice. We've cited a goodly portion of it throughout this Foundations
page, as you'll see.)
- Benefits?
www.nectac.org/~pdfs/pubs/econbene.pdf
The Long Term Economic Benefits Of High Quality Early Childhood Intervention
Programs - Minibibliography answers one aspect of the benefits question.
An extensive body of research indicates that high quality early intervention
for at-risk infants, toddlers, and young children and their families is
a sound economic investment. Courtesy of NECTAC, 2004, 9 pages.
Early Intervention in Your State
- Is early intervention available in my state?
www.nichcy.org/states.htm
Oh yes, EI services are available in your state. Visit NICHCY's state resource
sheets page, click on your state, and look for the heading "Programs
for Infants and Toddlers with Disabilities: Ages Birth through 2." You'll
find the contact info for the early intervention system in your state. That's
just the starting place. There's an incredible EI network in most states and
a great deal of online information about early intervention services in general,
a state's system in specific, training modules, and... be sure to visit your
state's online EI resources, which will lead you into the heart of the system
where you live.
- How does my state define who's eligible for services?
www.nectac.org/~pdfs/pubs/nnotes18.pdf
Find the answer in State and Jurisdictional Eligibility Definitions for
Infants and Toddlers With Disabilities Under IDEA.
- And how does my state define "developmental delay" under
Part B of IDEA?
www.nectac.org/~pdfs/pubs/nnotes15.pdf
Find the answer in Eligibility Policies and Practices for Young Children
Under Part B of IDEA.
- State definitions matter.
www.tracecenter.info/snapshots/snapshots_vol1_no4.pdf
This 6-page article, States' Part C Eligibility Definitions Account for
Differences in the Percentage of Children Participating in Early Intervention
Programs, comes from TRACE (Tracking, Referral and Assessment Center
for Excellence).
- What is (and who's on) my state's ICC?
www.nectac.org/contact/iccchair.asp
As required by the IDEA, each state has what's known as an Interagency Coordinating
Council, or ICC. Its role in the state's early intervention system is suggested
by its title---to address the coordination of the efforts of the various agencies
involved in providing or supervising the provision of EI services. Find out
about your state's ICC at the link above---its composition and membership,
parent roles and participation, structure and organization, and roles and
functions.
- If you live in California (and even if you don't)...
www.wested.org/cpei
WestEd’s Center for Prevention & Early Intervention (CPEI) provides
training, technical assistance and resource development and provision supporting
early intervention services for California infants and toddlers with disabilities
and at-risk conditions and their families. For those of us who don't live
in CA, there's still lots of info at CPEI, including the online Early Start
Library, a specialized collection of more than 4,200 items you can check out—videotapes,
training kits, latest research studies, and much more.
Who's Who in Early Intervention
How long a list would you like? In the interests of efficiency, we're going
to give you the short and to-the-point list to get you started (we apologize to
all those organizations we haven't listed here). This starter list will definitely
lead you into the wider network and keep you informed in the ongoing work in early
intervention.
- National Early Childhood Technical Assistance Center (NECTAC).
www.nectac.org/
NECTAC supports the implementation of the early childhood provisions of the
Individuals with Disabilities Education Act (IDEA). Its mission is to strengthen
service systems to ensure that children with disabilities (birth through five)
and their families receive and benefit from high quality, culturally appropriate,
and family-centered supports and services. The center addresses this mission
by working primarily with the state agencies responsible for ensuring EI services.
- CLAS, the Early Childhood Research Institute on Culturally and Linguistically
Appropriate Services.
www.clas.uiuc.edu
CLAS identifies, evaluates, and promotes effective and appropriate early intervention
practices and preschool practices that are sensitive and respectful to children
and families from culturally and linguistically diverse backgrounds. You won't
believe how many materials they offer to guide early intervention practice---and
in multiple languages as well. We mention quite a few of them in these Foundations
pages, but you'll want to visit anyway and see how much more there is.
- Research and Training Center (RTC) on Early Childhood Development.
www.researchtopractice.info
The RTC on Early Childhood Development is conducting applied research on knowledge
and practice that improves interventions associated with the healthy mental,
behavioral, communication, preliteracy, social-emotional, and interpersonal
development of infants, toddlers, and preschoolers with or at risk for developmental
disabilities. You'll find a wealth of information about effective early childhood
intervention practices based on research on the RTC's Web site.
- Early Childhood Research Institute on Measuring Growth and Development
(ECRI-MGD).
http://ici2.umn.edu/ecri/index.html
The ECRI-MGD was launched in October 1996 with a mission to produce a comprehensive
system for continuously measuring the skills and needs of individual children
with disabilities from birth to eight years of age. A wide range of reports
and manuals encapsulating their results are available at the link above.
- The ECO Center.
www.the-ECO-center.org
ECO is the Early Childhood Outcomes Center: Demonstrating Results for Infants,
Toddlers, and Preschoolers with Disabilities and Their Families. If you're
looking for research-based info on how to measure outcomes and the success
of your efforts, you'll soon find yourself at ECO.
- TRACE.
www.tracecenter.info/
TRACE stands for Tracking, Referral and Assessment Center for Excellence.
The major goal of TRACE is to identify and promote the use of evidence-based
practices and models for improving child find, referral, early identification,
and eligibility determination for infants, toddlers, and young children with
developmental delays or disabilities who are eligible for early intervention
or preschool special education. Lots of great stuff here!
- Division for Early Childhood (DEC).
www.dec-sped.org/
DEC is especially for individuals who work with or on behalf of children with
special needs, birth through age eight, and their families. DEC promotes polices
and advances evidence-based practices that support families and enhance the
optimal development of young children who have or are at risk for developmental
delays and disabilities. Visit DEC's publications page to connect with (for-sale
but on-point) DEC's Recommended Practices series.
- IDEA Infant and Toddler Coordinators Association.
www.ideainfanttoddler.org/index.htm
This association promotes the mutual assistance, cooperation, and exchange
of information and ideas in the administration of the IDEA Infant and Toddler
Program. It also provides support to the state coordinators. Membership in
the Association is open to the agency within each state or jurisdiction that
has been designated as the Part C lead agency. Membership fees are established
in relation to the Federal Part C allocation.
Pediatrics and Health Care
It is difficult to discuss early intervention and early childhood development
in the absence of discussing health care concerns. Health issues, health care,
the role of the pediatrician in diagnosing developmental delays or disabilities,
how to address health costs...the list goes on and on. All are topics worthy of
stand-alone Foundations pages. Lacking that at this moment, we will list
several "starter" resources below, with the clear recognition that there
is much, much more to say. We will, in the future. For now...start with these
resources, which will lead you to more.
- For pediatricians: Intro to early intervention.
www.medicalhomeinfo.org/health/Downloads/EIBrochureF.pdf
Pediatricians are often among the first professionals to see and work with
children who have special health care needs. As such, they are invaluable
links in the system of referral to early intervention for families. This 12-page
brief explains the early intervention system to pediatricians, from the legal
basis for EI to an excellent overview of how the system works and what it
is intended to accomplish.
- For early interventionists: Intro to "the medical home."
www.medicalhomeinfo.org/health/Downloads/EIBrochureF.pdf
The brief described in the bullet above is also intended for early intervention
programs. It will help programs learn about the role of the medical home in
providing comprehensive, coordinated, collaborative care in concert with the
family and other medical and non-medical service providers; The brief also
provides strategies for effective collaboration and communication between
the pediatric clinician and early intervention programs in the provision of
quality, comprehensive care.
- What's a "medical home," and why is it so important for children
with special health care needs?
www.medicalhomeinfo.org/index.html
The National Center for Medical Home Initiatives will answer this question
in spades. Through the National Center, physicians, parents, administrators,
and other health care professionals have access to educational, resource,
and advocacy materials, guidelines for care, evaluation tools, and technical
assistance. At the link above, you have access to a wealth of info, including
(but NOT limited to):
Every Child Deserves a Medical Home Training Curriculum
www.medicalhomeinfo.org/training/index.html
The same Training Curriculum in Spanish!
www.medicalhomeinfo.org/training/manualspanish.html
State pages: Medical home initiatives & resources by state
www.medicalhomeinfo.org/states/index.html
- $$$$$$. Financing health care.
www.familyvoices.org/Information/HCF.htm
Family Voices is a national, grassroots clearinghouse for information and
education concerning the health care of children with special health needs.
If special health care needs is your area of concern, you'll want to explore
every corner of Family Voices site.
- Maternal and Child Health funding, library, and system.
https://performance.hrsa.gov/mchb/mchreports/Search/search.asp
The federal government funds many programs intended to improve maternal and
child health (MCH). Many of these can offer valuable assistance to children
with special health care needs. To find out more about what services and programs
are available to address health-related concerns, visit the link above, or
any of these listed below:
Who's the contact for MCH projects in my state?
https://performance.hrsa.gov/mchb/mchreports/link/state_links.asp
What is my state's toll-free number to find out more about Maternal and
Child Health funding and projects?
https://performance.hrsa.gov/mchb/mchreports/Search/core/MchAppContmenu.asp
Maternal and Child Health Library listing of topics A-Z.
www.mchlibrary.info/AZtopics.htm
Some topics you might want to investigate in the MCH library: Access to
health care, Child development, Child health insurance, Children with special
health care needs, Community-based services, Culturally competent services
and culturally sensitive materials, Developmental screening, Family resource
centers...and that's just through the beginning of F!
- For pediatricians: Your role in developing the IFSP.
http://pediatrics.aappublications.org/cgi/content/abstract/104/1/124
From the American Academy of Pediatrics, Committee on Children with Disabilities.
- For pediatricians: Your role in family-centered EI services.
http://pediatrics.aappublications.org/cgi/content/abstract/107/5/1155
Another from the American Academy of Pediatrics, Committee on Children with
Disabilities.
- University Centers for Excellence in Developmental Disabilities.
www.aucd.org/index.htm
Heard of the University Centers? That's a network of 61 university-based programs
with the telling name of "University Centers for Excellence in Developmental
Disabilities Education, Research, and Service (UCEDD)." University Centers
have four broad tasks: conduct interdisciplinary training, promote community
service programs, provide technical assistance at all levels (from local service
delivery to community and state governments), and conduct research and dissemination
activities.
The link above takes you to the main page of the network. If you click on
"UCEDDs" on the left menu, you'll go to a description of the UCEDD
network. At the top of the page, dead-center, is "Link to UCEDD Directory,"
which you can choose if you'd like to identify the university center in your
state.
- For more "Resources Within the Medical/Healthcare Community"...
www.nichcy.org/enews/foundations/healthcare.asp
Find out more about specific disabilities, find a doctor or a health care
center, find insurance for uninsured children, and more at NICHCY's Connections
page entitled... can you guess?
Child Find Matters
Child Find operates in each state to identify children who have disabilities
or who are at risk of developmental delay. This includes infants and toddlers
who may be eligible for early intervention services. All on its own, Child Find
is a gigantic undertaking. With this very young target population, Child Find
must raise awareness across a range of caregivers as to the "warning signs"
of disabilities or developmental delays in young children--and often in multiple
languages, too.
If you're looking for ways to address the effectiveness of your area's Child Find
system, here are some resources you may find helpful.
- Child find info aplenty.
www.childfindidea.org/
In 1999, the Office of Special Education Programs (OSEP) funded Child Find
Demonstration projects, and the Web site above has emerged to distill and
disseminate their collective experiences. For the purposes of sharing information
about conducting a child find effort, they've broken down child find into
seven elements: Definition of Target Population, Public Awareness, Referral/Intake,
Screening and Identification, Eligibility Determination, Tracking, and Interagency
Coordination. Enter the site through the link above, find out more about each
element, and connect with resources on that element.
- The research base on child find: What works.
www.tracecenter.info/childfind.php
A review and content analysis of the child-find-related literatures indicate
that the following seven categories of practices have special relevance for
improving early intervention and preschool special education child find practices.
Research syntheses in each of the subcategories are being completed by TRACE
investigators with a primary focus on the characteristics of practices that
are most effective in identifying children who are or may be eligible for
early intervention or preschool special education.
- Getting people to notice the "warning signs" of disabilities
and know there's help available.
www.clas.uiuc.edu/special/childfind/index.html
CLAS (Early Childhood Research Institute on Culturally and Linguistically
Appropriate Services) searched for Child Find brochures, handbooks, and materials
distributed in state and local efforts to raise awareness of families, medical
professionals, and child care workers about the indicators or "warning
signs" of disabilities or developmental delays in young children, as
well the availability of early intervention services. These include such items
as:
Prescreening or growth charts, brochures, and guidebooks for
parents and professionals to use in considering a child's developmental
growth in key areas such as vision, hearing, motor skills, and language
development.
Materials in languages such as Arabic, Chinese, Hmong, Italian, Japanese,
Khmer, Korean, Laotian, Russian, Sioux, Spanish, Vietnamese, and Yiddish.
- Did you notice all the languages in the item just above? Addressing
diversity matters, too.
www.kihd.gmu.edu/mectt/trainingpackage.htm
Child Find must cut across all spectrums of society, since disability touches
all of us. So, the ability to talk to and reach diverse audiences is critical---and,
often, problemmatic. If it's a problem within your system, or just a matter
to continually address and improve, then check this resource out. It'll help.
From the Multicultural Early Childhood Team Training (MECTT) project at the
Helen A. Kellar Institute for Human disAbilities comes a training curriculum
to prepare parent and professional teams to work with diverse families of
young children with disabilities. Module 3 deals with "Family Find,"
and provides training on strategies and techniques for finding and establishing
alliances with culturally diverse families. Module 4 talks about "Communication
and Partnerships," and addresses general principles of communication
and specific cultural factors which influence interpersonal communication.
- More on getting people to notice the warning signs.
There are numerous points along the way where someone may notice that a child
is not developing as expected: parents, family members, child care providers,
physicians, nurses, and so on. You may be frustrated by trying to develop
materials to reach each of these audiences with the news about Child Find.
Maybe these already-developed materials can help.
Parents.
www.newassessment.org/Public/Channels/default.cfm?CategoryID=1
Teachers, Childcare Personnel, and Interventionists.
www.newassessment.org/Public/Channels/default.cfm?CategoryID=2
Therapists and Medical Professionals.
www.newassessment.org/Public/Channels/default.cfm?CategoryID=4
Diagnosticians and Psychologists.
www.newassessment.org/Public/Channels/default.cfm?CategoryID=3
- Need basic info on developmental milestones to share?
www.zerotothree.org/dev_miles.html
Take it from Zero to Three, the National Center For Infants, Toddlers and
Families. The info is also available in Spanish, at:
www.zerotothree.org/Spanish/dev_miles_Sp.html
- More on child development, developmental milestones---and an intro to
developmental screening.
www.cdc.gov/ncbddd/child/devtool.htm
From the National Center on Birth Defects and Developmental Disabilities (NCBDDD).
Good for parents with concerns about their child's development. Fact sheets
are currently available on several disabilities (cerebral palsy, autism, ADHD,
vision loss, hearing loss, and mental retardation)---a description of the
disability, early signs of the disability, what to look for, and what to do
next.
- Wanna join a Community of Practice?
www.tacommunities.org/ev_en.php?ID=1008_201&ID2=DO_COMMUNITY
The Office of Special Education Programs (OSEP) has formed several communities
of practice (CoP) to improve implementation of IDEA. One focuses upon Child
Identification. See what this CoP has to offer, at the link above.
- How do you promote referral to early intervention programs?
www.tracecenter.info/referral.php
The methods and procedures that can be used by Part C/Part B(619) personnel
to influence referrals to early intervention and preschool special education
include different kinds of practices being reviewed and synthesized by TRACE
investigators. Major emphasis is being placed on the practices that are most
effective in promoting referrals to Part C and Part B(619) programs.
- More from TRACE on "How-To" increase referrals.
www.tracecenter.info/endpoints/endpoints_vol1_no1.pdf
This 2-page distills TRACE's findings from their research investigations (the
point above).
- And a "How-To" on encouraging health care professionals to
include EI services on health care plans.
www.tracecenter.info/milemarkers/milemarkers_vol1_no10.pdf
This Milemarkers bibliography also comes from TRACE and identifies
sources of information on points in time where early intervention staff to
work with health care professionals to identify children eligible for early
intervention and refer them to the EI system.
Assessment/Evaluation Practices
Once the Child Find system has gotten people's attention and "found"
children with disabilities or at risk of disabilities, the children must be assessed
to see if they are eligible for services and, if so, what types of services and
intervention are needed.. This is obviously a huge area within early intervention.
If you're looking for ways to address the effectiveness of your system's assessment
processes, here are some resources you may find helpful.
- Developmental and behavioral screening.
www.dbpeds.org/articles/detail.cfm?id=5
Screening children for developmental, behavioral, and emotional problems is
an important responsibility for pediatricians. This online module provides
information about screening techniques that can be used effectively and efficiently
in the office setting, and includes an annotated list of Developmental and
Behavioral/Emotional screening tools.
- Recommended screening tools, from First Signs.
www.firstsigns.org/screening/tools/rec.htm
First Signs, Inc. is a national non-profit organization dedicated to educating
parents and pediatric professionals about the early warning signs of autism
and other developmental disorders. Take advantage of their extensive review
of current screening tools available and the recommendations they make about
what to use.
- Assessing with solutions in mind.
http://ici2.umn.edu/ecri/index.html
The Early Childhood Research Institute on Measuring Growth and Development
(ECRI-MGD) offers quite a range of reports intended to help EI systems use
solutions-oriented assessments that allow families and early childhood and
early elementary educators to identify features of classroom and home settings
they can change to improve children's developmental outcomes.
- Don't overlook cultural or linguistic diversity during assessment.
www.nectac.org/~pdfs/pubs/earlyidmini.pdf
The multitude of linguistic and cultural variations that exist in the United
States presents a special challenge to early interventionists. This mini-bibliography
(annotated) from NECTAC is designed to put you in touch with resources on
how to effectively address diversity concerns during early identification
of children.
- Assessment practices: What's recommended?
www.newassessment.org/
What are the recommended assessment practices in early childhood intervention?
Find out at the New Assessment: Early Childhood Resources Web site, which
includes info on innovative assessment models, processes, and resources that
benefit young children and their families. There are materials for parents,
too, and online training info for professionals.
- Assessment that guides intervention.
www.fpg.unc.edu/~eco/pdfs/IndivGrowthandDevelopment.pdf
Individual Growth and Development Indicators (IGDIs) are explained as a tool
for measuring a child's progress toward selected outcomes and, using that
info, determining and refining intervention.
- Evaluation tools: "Special Collection."
www.clas.uiuc.edu/special/evaltools/index.html
CLAS offers an online collection of evaluation tools, which they describe
as a "listing of a variety of screening and diagnostic tools, and books
about recommended practices in assessing the development of young children
with and without disabilities from culturally and linguistically diverse groups."
Interagency Efforts
Many agencies are typically involved in providing EI and preschool services to
children with disabilities. Head Start, child care, health services, education...who
might you bring to the table, unite forces with, share expenses with, and plan
with to increase state capacity to address the needs of young children? Here are
some resources to help you consider and design a unified, collaborative approach
to this shared responsibility.
- The state ICC is key to many opened doors.
www.nectac.org/~pdfs/topics/OpeningDoors.pdf
Each state has what's known as an Interagency Coordinating Council, or ICC.
How do you build an ICC that works well and accomplishes its purposes? And
what are the benefits of the service integration that the ICC pursues? Read
all about it in "Opening Doors Through State Interagency Coordinating
Councils: A Guide for Families, Communities and States."
- Assembling a diverse ICC.
www.nectac.org/~pdfs/pubs/nnotes17.pdf
As required by IDEA, State ICCs must be composed of at least 20% parents of
children with disabilities. Additionally, states often seek to recruit parent
members from culturally diverse backgrounds to ensure that a variety of viewpoints
are represented at the table. The document at the link above describes several
ways ICCs can encourage and expand diverse parent representation on councils
and committees. Although it specifically concerns parent members, this paper
can also be useful for general recruitment of diverse members.
- Promoting early care and education partnerships: What can a state do?
http://ccf.edc.org/PDF/StateBrief.pdf
The Center for Children and Families has a lot to say on this topic, emerging
from its Partnership Impact Research Project, an intensive six-year research
investigation on the nature of partnerships among early education providers.
- Getting from here (separate systems) to there (collaborative systems).
http://ecrp.uiuc.edu/v6n1/clifford.html
This paper explores strategies for moving from independent and overlapping
services toward a seamless system of early child care and nurturance provided
by the four diverse players in the early childhood field: child care, Head
Start, services for children with disabilities, and preschool programs.
- Developing partnership agreements.
www.nccic.org/quilt/checklist.html
Here's a checklist for how to define each partner's roles and responsibilities
and many of the elements needed for the partnership to run smoothly. Courtesy
of the National Child Care Information Center (NCCIC), which offers many more
publications on the subject of partnering to improve services.
- Want an example?
www.nectac.org/topics/inclusion/collab/intagagree.asp
See what three states have done in their interagency agreements.
- Promoting collaborative teams at the community level.
www.nectac.org/~pdfs/topics/inclusion/TasksTipsTools.pdf
"Tasks, Tips and Tools for Promoting Collaborative Community Teams"
is a product of the Collaborative Planning Project (CPP), based at The Center
for Collaborative Educational Leadership in Denver, Colorado. The document
is available online at NECTAC.
- Financing early childhood systems.
www.nectac.org/~pdfs/pubs/financemini.pdf
This annotated bibliography presents resources related to financing early
childhood systems to support inclusive options for young children with disabilities.
- Interagency agreements for transitions.
http://facts.crc.uiuc.edu/facts1/facts1.html
The booklet you'll find at the link above focuses on the role of interagency
agreements in facilitating the transition of young children and their families
from early intervention services to preschool services as children turn three
years of age. It even closes with sample agreements!
The IFSP
IFSP stands for Individualized Family Service Plan, and it's the cornerstone of
family involvement and early intervention services provided to infants and toddlers
with disabilities. Find out the basics and more about the IFSP below.
Involving Families Effectively
Families, most particularly parents, are vital participants in early intervention
programming, both at an organizational level determining policies and scope and
at the individual level where they are intimately involved in determining the
EI services that their own child will receive. How might the EI system promote
the active involvement of families at either the organizational and individual
levels? Both types of involvement drive directly to the effectiveness of the system
overall and for individual children.
- Helping parents understand the assessment process.
www.zerotothree.org/newvisions.html
ZERO TO THREE, the National Center For Infants, Toddlers and Families, offers
"New Visions for Parents," a packet of materials that contains,
among other things, (a) A Parent's Guide to Understanding Developmental Assessment;
(b) Planning and Preparing for Your Child's Developmental Assessment; and
(c) List of Terms: Terms Frequently Used in Developmental Assessment. Parents
can read or download these materials online at the link above, and practitioners
can download and share them with parents.
- More for families on assessment.
www.newassessment.org/Public/Channels/document.cfm?ID=2
Assessment Tips for Parents is short and sweet and to the point.
- Family-centered assessment practices.
www.kihd.gmu.edu/mectt/trainingpackage.htm
Above, under "Child Find," we mentioned a training curriculum available
from the Multicultural Early Childhood Team Training (MECTT) project at the
Helen A. Kellar Institute for Human disAbilities. Well, Module 6 of the training
curriculum focuses on family-centered assessment. Assessment is defined; family-centered
assessment practices are described; and cultural factors influencing assessment
are identified. The role of the family throughout the assessment process is
discussed.
- Explaining rights and safeguards to families.
www.nectac.org/~pdfs/pubs/assuring.pdf
Assuring the Family's Role on the Early Intervention Team: Explaining
Rights and Safeguards provides a thorough discussions of what rights
and safeguards we're talking about and includes clear, easy-to-read materials
that can be shared with parents.
- Involving Latino families.
www.fpg.unc.edu/products/product_detail.cfm?apubsid=513
Addressing the Needs of Latino Children: A National Survey of State Administrators
of Early Childhood Programs (Executive Summary) examines the linguistically
and culturally relevant practices that state administrators reported were
recommended or being used by early education and intervention programs that
enrolled Latino children and families.
- Working with culturally & linguistically diverse families.
http://ceep.crc.uiuc.edu/eecearchive/digests/2001/bruns01.html
- Walking the walk: A guide to diversity resources for trainers.
http://www.fpg.unc.edu/~walkingthewalk/pdfs/WTW_guide.pdf
This annotated listing of high quality resources includes videotapes, books,
curricula, and other materials that can be used to assist in growing a more
diverse and better prepared workforce to serve infants, toddlers, children
and families who are culturally and linguistically diverse.
- Getting fathers involved.
http://ecrp.uiuc.edu/v5n2/green.html
- National Parent Leadership Development Project for ICCs.
www.iccparent.org/
Being a parent representative on an ICC can be a confusing but exhilarating
experience. The leadership support project at the link above is designed to
support parents of children with disabilities serving on their state ICC,
offer leadership institutes, a network of fellow parents, and the opportunity
to orient, learn, grow, and succeed in the role.
- Influencing the interaction between parent and child.
www.clas.uiuc.edu/techreport/tech13.html
Transitioning to Preschool
- Out of EI and into preschool: What's it all about?
www.handsandvoices.org/articles/education/law/transition.html
Here's a decent explanation, including why it's important to plan for this
transition; the benefits to children, families, and teachers of such planning;
and the chief differences between the EI system and preschool service system
in terms of child find, referral, evaluation, eligibility, family involvement,
the type of plan that's written and the services that are delivered, and service
coordination
- Pull a thread and find a minibibliography.
www.nectac.org/~pdfs/pubs/transition.pdf
Transitions From Infant Toddler Services to Preschool Education - Minibibliography
is available online from NECTAC. This annotated bibliography presents resources
related to transitions from infant-toddler services to preschool education.
2004, 8 pages.
- Parents! For Parents!
http://facts.crc.uiuc.edu/facts4/facts4.html
If you're a parent and your child is going to soon be transition out of early
intervention and into preschool services, you may find Planning Your Child's
Transition to Preschool: A Step-by-Step Guide for Families very helpful.
- Who's in charge of preschool services, and what are they doing?
www.nectac.org/~pdfs/sec619_2005.pdf
Find out in the 2005 edition of this annual NECTAC publication, which contains
information on state policies, programs, and practices under the Preschool
Grants Program (Section 619 of Part B) of IDEA. Information supplied by the
coordinators of state and jurisdictional Section 619 programs updates the
following content areas: program administration, funding, and education reform;
charter and private schools; interagency coordination; personnel; transition;
programming; accreditation and monitoring; performance outcomes; public awareness;
IEPs, IFSPs, and family-centered services; state preschool program data from
www.ideadata.org; and contact information
for state and jurisdictional program coordinators.
- Recommended transition practices.
www.clas.uiuc.edu/techreport/tech4.html
This paper from CLAS examines current transition practices within the context
of culturally and linguistically diverse groups, highlighting the transition
from early intervention services to preschool services. An overview of recommended
practice indicators in EI/ECSE and ECE is presented.
- Have you visited the center that's looking only at what makes for effective
transitions?
www.ihdi.uky.edu/NECTC/default.asp
The National Early Childhood Transition Center (NECTC) is investigating and
validating practices and strategies that enhance the early childhood transition
process and support positive school outcomes for children with disabilities.
Search NECTC's transition literature database, tell your transition
story, and keep track of NECTC's emerging results and recommendations.
- And visit the The FACTS/LRE Project: Family and Child Transitions into
Least Restrictive Environments.
http://facts.crc.uiuc.edu
Need suggestions or insights into how to ease transitions to preschool services?
Visit FACTS/LRE.
- A preschool inclusion manual.
www.circleofinclusion.org/english/pim/index.html
Ten chapters of information and how-to's.
- Wanna join the Preschool LRE Community of Practice?
www.tacommunities.org/ev_en.php?ID=1028_201&ID2=DO_COMMUNITY
The Office of Special Education Programs (OSEP) has formed several communities
of practice (CoP) to improve implementation of IDEA. One focuses upon the
Preschool LRE-Part B/619 Community. See what this CoP has to offer, at the
link above.
Materials in Spanish
- Intervención temprana: What is it? How to find it.
www.nichcy.org/pubs/spanish/pa2stxt.htm
NICHCY offers a Spanish version of Finding Help for Young Children with
Disabilities (Birth-5). Early intervention services are explained, as
well as how to access them for infants and toddlers. This Spanish publication
will also connect readers with many of the major organizations who can tell
them more.
- Intervención temprana--States offering info in Spanish about
EI.
Travel around to states with large Spanish speaking populations and you'll
find information in Spanish about early intervention in general and state
EI services in particular.
California.
Offers many materials about its Early Start system, such as:
- "A Family Introduction to California's Early Start Program for
Infants and Toddlers with Disabilities and Their Families" in Spanish.
www.dds.ca.gov/EarlyStart/PDF/Family_Introduction_EarlyStart_Spanish.pdf
- Starting Out Together - An Early Intervention Guide for Families"
in Spanish
www.dds.ca.gov/EarlyStart/PDF/StartingOut_Spanish.pdf
- Parents' Rights: An Early Start Guide for Families" in Spanish.
www.dds.ca.gov/EarlyStart/PDF/Parents_Rights_Spanish.pdf
- Colorado.
www.cde.state.co.us/earlychildhoodconnections/Sp_parents.htm
- Florida.
www.firn.edu/doe/commhome/pdf/pikspanf.pdf
- Nevada.
http://health2k.state.nv.us/BEIS/ChildFindBrochureSpan2005.pdf
- New Mexico.
www.health.state.nm.us/ltsd/fit/earlyint.html
- New York.
www.vesid.nysed.gov/lsn/HowIGrow/crezco.htm
- Puerto Rico.
www.salud.gov.pr/Dsh/
- Rhode Island.
www.dhs.state.ri.us/dhs/famchild/ei_forms/ei_central_directory_sp.pdf
- Texas.
www.dars.state.tx.us/ecis/publications/SpanishHandbook.pdf
- Virginia.
www.infantva.org/documents/fam-OfficalRightsBookletSpanish.pdf
- La importancia del hogar médico para los niños con necesidades
especiales de salud: The medical home.
www.medicalhomeinfo.org/tools/spanishportal.html
Find out about the "medical home" so important to children with
special health care needs. Training materials in Spanish, too--at:
www.medicalhomeinfo.org/training/manualspanish.html
- Detecting hearing loss early: Los programas de Detección Auditiva
e Intervención Temprana.
www.cdc.gov/ncbddd/ehdi/spanish/default.htm
Los programas de Detección Auditiva e Intervención Temprana
(EHDI, por sus siglas en inglés) están localizados en los estados
y están diseñados para identificar a los niños con pérdida
auditiva por medio de un examen universal. Esto permite que los niños
que son identificados sean inscritos en un programa de intervención
temprana. In other words: EHDI programs exist in the states to identify children
with hearing loss as early as possible and to involve them in early intervention.
- Criando niños sordos: Raising children who are deaf.
www.raisingdeafkids.org/spanish/learning/ei/index.jsp
The link above takes you to a page describing in Spanish what early intervention
is, how to access EI services, how the IFSP is designed, and much more.
- Intervención temprana y el síndrome de Down: EI and children
with Down syndrome.
w
ww.ndss.org/content.cfm?fuseaction=InfoRes.HechosDesarrolloarticle&article=181
An explanation of early intervention services, with specific focus upon EI
for children with Down syndrome.
- Planificación de transiciones a preescolar: Planning transitions
to preschool.
www.tsbvi.edu/Outreach/seehear/summer02/planning-span.htm
This article, available in both English and Spanish from the Texas School
for the Blind and Visually Impaired, goes into some detail about how to plan
for a child's transition from EI to preschool services.
- Orientación y movilidad: O&M.
www.tsbvi.edu/Outreach/seehear/spring05/how-span.htm
Travel along with this parent as she learns what O&M services mean to
her child who was diagnosed at 3 months with a cortical visual impairment.
Cómo Aprendí Lo Que Significa O & M is also available
in English (How I Learned What O&M Means).
Effective Interventions
While a great deal of information on effective early intervention practice is
available at the resources already mentioned above, we would like to pull out
and note a few resources in areas of common concern with delivery of early intervention
services.
- Using assistive technology.
www.fape.org/pubs/FAPE-12.pdf
Research shows that using assistive technology can help young children with
disabilities learn valuable skills. Find out more about AT for infants and
toddlers at the link above.
- Really? Assistive technology for infants and toddlers with disabilities?
www.asu.edu/clas/tnt/
Yes, indeed, there are many ways in which AT can optimize such young children's
development and learning. Visit the Tots 'n Tech Research Institute (TnT)
and find out how. TnT has lots of materials and guidance for families and
early interventionists alike.
- Funding assistive technology.
www.nectac.org/~pdfs/pubs/atfunding.pdf
This annotated bibliography from NECTAC presents resources exploring the various
assistive technology funding sources for infants, toddlers and young children
with disabilities.
- Helping children learn that there's a relationship between their behavior
and its consequences.
www.researchtopractice.info/productBridgesBBPecl.php
The RTC on Early Childhood Development describes what's effective in "early
contigency" learning and how disability or developmental delays affect
a child's speed in learning the connection between their behavior and the
consequences it may have. Implications for practice are described in terms
of the environmental arrangements most likely to optimize the greatest amount
of positive social responding. And hey! There's info in Spanish: ¡Sí!
¡Hice que pasará! (YES! I made it happen!) and ¡No
hay apuro! Las investigaciones comprueban que vale el ser paciente (No
rush! Research proves it pays to be patient).
- Promoting the social development of young children and addressing challenging
behavior.
http://challengingbehavior.fmhi.usf.edu/handouts/ProgramPractices.pdf
Evidence-based program practices are provided in this fact sheet from Center
for Evidence-Based Practice: Young Children with Challenging Behavior. A comprehensive
model of universal, secondary, and indicated prevention and intervention practices
are described.
- Addressing challenging behavior in general.
http://challengingbehavior.fmhi.usf.edu
If this is your area of interest and concern, then, really, crawl all over
the Web site of the Center for Evidence-Based Practice: Young Children with
Challenging Behavior. You'll find handouts, research, and training materials
galore. Here are just a few titles to whet your appetite:
Research Synthesis on Effective Intervention Procedures
Systems of Service Delivery: A Synthesis of Evidence
Relevant to Young Children With or At Risk of Challenging Behavior
Supporting Infants and Toddlers with Challenging Behavior
Comprehensive Evidence-Based Social-Emotional Curricula for Young Children
- Young children with disruptive behavior disorders and Parent-Child
Intervention Therapy (PCIT).
www.researchtopractice.info/productBridgesBBPtbi.php
Here's another research-based resource from the RTC on Early Childhood Development.
This one focuses upon Parent-Child Intervention Therapy (PCIT). Implications
for practice are described in terms of core relationship-building and skills
that parents can implement in order to optimize child behavior functioning.
- Autism and Pivotal Response Training (PRT).
www.evidencebasedpractices.org/bridges/bridges_vol2_no4.pdf
The RTC on Early Childhood Development strikes again. This resource from the
RTC focuses upon improving the social and emotional behaviors of young children
with autism. Implications for practice suggest a set of six strategies that
encourage the social-emotional development in young children.
- Solutions Tool Kits: Practice guides for parents and early childhood
staff alike.
www.researchtopractice.info/productSolutions.php
The RTC on Early Childhood Development just keeps on comin' with materials
you can use. Their Solutions Tool Kits include collections of practice
guides for promoting child development and learning. Any of these interest
you?
Games for growing: Teaching your baby using early learning games.
www.researchtopractice.info/productSolutionsGG.php
Lap It Up: Early learning through parent-child lap games.
www.researchtopractice.info/productSolutionsLU.php
Powerful Playtime: Toys and learning for the very young child.
www.researchtopractice.info/productSolutionsPP.php
Literacy for Little Ones: Activities to boost beginning reading, writing,
and much more!
www.researchtopractice.info/productSolutionsLLO.php
Up Close and Personal: Strengthening the parent-child relationship.
www.researchtopractice.info/productSolutionsUCP.php
Accentuate the Positive: Strengthening positive child behaviors.
www.researchtopractice.info/productSolutionsAP.php
- Promising Practices.
www.promisingpractices.net/benchmark.asp?benchmarkid=26
With the benchmark of "Increase the percentage of children 0-5 who exhibit
age-appropriate mental and physical development," the Promising Practices
Network link above will provide you with a list of "proven programs"
and "promising programs."
Staff Training and Development
Here are some resources you can use in professional development. We also recommend
that you use NICHCY's state resource
sheets as a starting place to enter the EI system in your state and see
what training modules or other training materials may be online for professional
development purposes (see discussion above about state resources, under the
section "IFSP".) There are quite a few. Even those from other states
can be useful in developing staff knowledge and competencies.
- Selected early childhood/early intervention training materials.
www.fpg.unc.edu/~scpp/pdfs/rguide.pdf
Walking the Walk: A Guide to Diversity Resources for Trainers is
an annotated listing of high quality videotapes, books, curricula, and other
materials that can be used to assist in growing a more diverse and better
prepared workforce to serve infants, toddlers, children and families who are
culturally and linguistically diverse.
- Assistive technology: Training staff and families.
http://asu.edu/clas/tnt/appendix/ATtrainingbrief2-8-05.pdf
Find out how in Assistive Technology Training for Providers & Families
of Children in Early Intervention, courtesy of Tots 'n Tech Research
Institute (TnT). And while you're there, you may want to read Evidence
Based Practice in Assistive Technology, available online at:
http://asu.edu/clas/tnt/appendix/EBPBrieffinal9-28-04.pdf
- Diversity on your staff, diversity in the families you serve.
www.fpg.unc.edu/~walkingthewalk/pdfs/WTW_guide.pdf
Walking the Walk: A Guide to Diversity Resources for Trainers is
an annotated listing of high quality videotapes, books, curricula, and other
materials that can be used to assist in growing a more diverse and better
prepared workforce to serve infants, toddlers, children and families who are
culturally and linguistically diverse.
- Hook up with others in your shoes at the Early Childhood Education online.
www.umaine.edu/eceol/
The Early Childhood Education On Line Web site exists to promote and facilitate
information management and exchange, and to serve as a resource and benefit
for all children, their families, and all people who help them grow and learn.
There, you'll find a listserv, a Treasure Hunt that functions as a Internet
training exercise for Early Childhood educators, and a host of resources and
connections across the spectrum of early childhood work.
- And here's another community online.
www.atsweb.neu.edu/cp/ei/index.html
The Global Early Intervention Network (GEIN) is an online informational resource
and discussion community. It's dedicated to helping parents, service providers,
students, faculty and others learn more about early intervention.
- Wanna join OSEP's Community of Practice for "Settings Part C Community?"
www.tacommunities.org/ev_en.php?ID=1029_201&ID2=DO_COMMUNITY
The Office of Special Education Programs (OSEP) has formed several communities
of practice (CoP) to improve implementation of IDEA. This one focuses on Part
C settings. The welcome screen says, "Enhancing Services in Natural Environments/
Part C Settings: PEOPLE-- CONVERSATIONS-- CONTENT-- GET INVOLVED!"
- Designing an effective TA system to pass the word through your network.
www.nectac.org/pubs/titlelist.asp#design
NECTAC offers a three-part workbook that's intended to serve as a planning
resource for state officials to help them think strategically about their
technical assistance (TA) systems---how to design it, how to use it to improve
capacity throughout the system. For the small cost of $5.00...read what you'll
get at the link above.
- Staff development, as a stand-alone topic.
www.nichcy.org/enews/foundations/stafftraining.asp
Visit NICHCY's eNews Foundations page on "Effective Practices
and Resources in Staff Development" for an indepth exploration of this
critical topic.
- Dealing with specific disabilities.
While professional practice guidelines are generally available within the
individual professional disciplines (e.g., speech-language pathology, mobility
and orientation, hearing habilitation), here are some resources you might
find useful for working with children (or parents) who have specific disabilities.
- Cerebral palsy.
www.ucp.org/ucp_generalsub.cfm/1/4/24
The UCP Research and Educational Foundation produces Research Fact Sheets
to inform professionals and the public about recent research findings, about
the cause, diagnosis, and treatment of cerebral palsy and related developmental
disabilities.
- Down syndrome.
www.altonweb.com/cs/downsyndrome/index.htm?page=eieffective.html
The link above will take you to one chapter online from a 1997 Paul H. Brookes
book about the effectiveness of early intervention. This chapter focuses
on the effectiveness of EI with children who have Down syndrome and describes
in detail a number of interventions and their impact upon cognitive development,
language and communication, parent-child interactions, and motor and physical
development.
- Down syndrome and speech-language treatment.
www.ds-health.com/speech.htm
Here's another chapter from a 1998 book, this one called Down Syndrome:
A Promising Future, Together, which appears online with permission
of Wiley-Liss, Inc., a subsidiary of John Wiley & Sons, Inc. Title of
the chapter? "Comprehensive Speech and Language Treatment for Infants,
Toddlers, and Children with Down Syndrome." More articles can be accessed
via the home page (www.ds-health.com/),
including "Why Physical Therapy?" and "Occupational Therapy
and DS."
- Epilepsy.
http://professionals.epilepsy.com/homepage/index.html
The epilepsy.com/professionals Resource Library is an online epilepsy resource
offering a comprehensive library of materials available for download that
will help healthcare professionals better help those living with epilepsy.
Find articles such as "Giving Medicine to Infants and Toddlers,"
"Classification of Epilepsies & Epilepsy Syndromes," and "First
Aid for Seizures."
- Fragile X syndrome.
www.fpg.unc.edu/~ncedl/PDFs/ED8_2.pdf
Summer 2004, Volume 8, #2, of Early Developments, from the National
Center for Early Development & Learning at the FPG Child Development
Institute.
- Hearing impairments: Online training for EI professionals.
http://center.uncg.edu/index.asp
CENTe-R stands for Collaborative Early Intervention National Training e-Resource.
CENTe-R's mission is to inform and support graduate-level professionals
serving families with infants and toddlers who are deaf/hard of hearing
through web-based training that embraces transdisciplinary approaches and
connections among ongoing learners.
- Motor skill impairments and interventions.
www.clas.uiuc.edu/techreport/tech1.html
"Culturally and Linguistically Sensitive Practices in Motor Skills
Intervention for Young Children," from CLAS.
- Visual impairment: Training modules online.
http://www.fpg.unc.edu/~edin/
The Early Intervention Training Center for Infants and Toddlers with Visual
Impairments offers multimedia training modules that provide the basic knowledge
and skills required to work with young children with visual impairments.
Training modules at present include the following topics: Family-Centered
Practices; Visual Conditions and Functional Vision: Early Intervention Issues;
Communication and Emergent Literacy; Developmentally Appropriate Orientation
and Mobility; and Assessment.
- More on visual impairment.
www.clas.uiuc.edu/techreport/tech7.html
From CLAS, "Visual Impairment In Young Children: A Review Of The Literature
With Implications For Working With Families Of Diverse Cultural And Linguistic
Backgrounds."
- For more on specific disabilities, don't forget NICHCY's info.
We didn't mention the disability you're concerned with? We DID mention it,
but you need more? Try these two places on our site, which will help you
identify organizations on specific disabilities who offer indepth knowledge
about the disability in question.
Disability fact sheets.
www.nichcy.org/disabinf.asp
"Search for Info" page.
www.nichcy.org/search.htm
- Still looking for info?
www.brookespublishing.com/dictionary/index.htm
Try Paul H. Brookes Publishing's online and searchable dictionary of disabilities.
Enter your search term and get back definitions of disabilities, related
disability organizations, medical terms, and more.
Materials from Commercial Publishers
Depending on your needs, you may wish to visit the Web sites of commercial
publishers, who offer a very useful range of materials helpful in early intervention,
including recommended practices for working with children with specific disabilities,
DVDs, training guides, and much more. We've listed some of the "biggies"
below to get you started. More are listed in NICHCY's
Connections...to Disability Publishers.
| This
information is copyright free.
Readers are encouraged to copy and share it, but please credit the National
Dissemination Center for Children with Disabilities (NICHCY). |
NICHCY eNews Foundation pages
are published to lay the groundwork for our eNews
service. We encourage you to share your
ideas and feedback with us. Project Director:
Suzanne Ripley
Author/Editor: Lisa Küpper, NICHCY
NICHCY thanks our Project Officer, Dr. Peggy Cvach, at the Office of Special
Education Programs (OSEP), U.S. Department of Education. |
| Publication
of this Web resource page is made possible through Cooperative Agreement
#H326N030003 between the Academy for Educational Development and the Office
of Special Education Programs of the U.S. Department of Education. The
contents of this document do not necessarily reflect the views or policies
of the Department of Education, nor does mention of trade names, commercial
products, or organizations imply endorsement by the U.S. Government. |
NICHCY
P.O. Box 1492 Washington, DC 20013 (800) 695-0285
· v/tty (202) 884-8441 · fax
nichcy@aed.org www.nichcy.org |