NICHCY eNews Foundations:

Rare Syndromes and Disorders

NICHCY is pleased to offer you eNews, a news service that brings you resources and information that are relevant to your interests and concerns. All are welcome to sign up for eNews and tell us what type of info they'd like to receive. Because we sift through mountains of resources daily at NICHCY, we are in an excellent position to let our users know when we run across something of interest to them. (Don't know what we're talking about here? Visit our eNews sign-up page, and read all about it.)

This eNews Foundations page offers the same starting point to everyone who signed up on eNews to receive information about Rare Disorders . It doesn't matter if you signed up to receive this info on Day 1 or Day 366 of our service. You'll begin to receive this info through our periodic eNews mailings on the subject---AND, in the meantime, this page will connect you with the resources and info we've already shared with others.

• the National Organization for Rare Disorders (NORD), at 1.800.999.6673, and:
  www.rarediseases.org



• the Office of Rare Disorders at the National Institutes of Health, at:
  http://rarediseases.info.nih.gov/
  
  
• the Genetic and Rare Diseases Information Center, which is a part of the Office of Rare Disorders and which answers questions from the general public, including patients and their families, health care professionals and biomedical researchers. Call toll-free at: 1.888.205.2311 (Voice), 1.888.205.3223 (TTY).
  


• DiseaseInfoSearch, for information on specific genetic conditions, at: http://geneticalliance.org/ws_display.asp?filter=diseases

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• Spanish Information on Disability Conditions (English version)
  www.nichcy.org/resources/spdisabconditions.asp#rare
  Part of NICHCY's stand-alone pages on Spanish materials on disability conditions includes a listing of Spanish language resources on rare syndromes/disorders. (Note: For our Spanish speaking users, we also offer this resource page completely in Spanish, below.)
  


• The Spanish version---Información en Español sobre Discapacidades Específicas.
  www.nichcy.org/resources/sp-spdisabcond.asp#rare
  NICHCY se complace en conectarle a fuentes de información en español sobre Síndromes/Desórdenes Raros. Presentamos esta página en español para nuestros usuarios hispanohablantes.

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