National Toll-free Numbers & Web Sites

Table of Contents Introduction Adoption/Foster Care AIDS/HIV Alcohol and Drug Abuse ADA Assistive Technology Blindness/Visual Impairments Burns Cancer Child Abuse Child Care Communication Disorders Craniofacial Syndromes Crisis Intervention Deafness/Hearing Impairments Disability Awareness/     Community Inclusion Education Employment/Independent Living Financial Counseling Hospice Information Centers Literacy Medical/Health Disorders Mental Health Minority Issues Parent Support Physical Disabilities Rare Syndromes Recreation Rehabilitation Respiratory Disorders Respite Care Rural Specific Disabilities Suicide Prevention SSI Trauma Wishes for Children

The following is a selected list of toll-free numbers and, new with this edition, Web sites for national organizations concerned with disability and children’s issues. Inclusion on this list does not imply endorsement by NICHCY or the Office of Special Education Programs. There are also many national disability organizations providing services and information which do not have toll-free numbers. If you would like additional help in locating assistance, or you find that a phone number or Web address listed on this sheet doesn't work, contact NICHCY at 1.800.695.0285 (Voice/TTY) or visit our Web site (www.nichcy.org). Contact information for organizations, of course, is always changing and we try our very best to keep up!

In this May 2005 edition, all new or changed entries are marked with a , beginning with the entirely new category, Adoption/Foster Care, just below.

AdoptUSKids
1(888) 200-4005
www.adoptuskids.org

Adoptive Families (national adoption magazine, information for families before, during, and after adoption.)
1(800) 372-3300 (to subscribe)
www.adoptivefamilies.com

Fostering Families Today (a bimonthly magazine with foster care and adoption resources)
1(888) 924-6736
www.fosteringfamiliestoday.com

National Adoption Center
1(800) TO ADOPT (862-3678)
www.adopt.org

National Adoption Information Clearinghouse
1(888) 251-0075
http://naic.acf.hhs.gov/

AIDSinfo (for information on HIV/AIDS, treatment, prevention, and research)
1(800) 448-0440 (V; English/Spanish)
1(888) 480-3739 (TTY)
www.aidsinfo.nih.gov

CDC-INFO (formerly the CDC National AIDS Hotline)   
1(800) 232-4636 (V; English/Spanish)
1(888) 232-6348 (TTY)
www.cdc.gov/hiv/dhap.htm

CDC National Prevention Information Network
1(800) 458-5231 (V; English/Spanish)
1(800) 243-7012 (TTY)
www.cdcnpin.org

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American Council for Drug Education (ACDE)
1(800) 488-3784
www.acde.org

Families Anonymous
1(800) 736-9805
www.familiesanonymous.org

National Clearinghouse for Alcohol and Drug Information
1(800) 729-6686 (V); 1(877) 767-8432 (Spanish)
1(800) 487-4889 (TTY)
www.health.org

National Council on Alcoholism & Drug Dependence
1(800) 622-2255
www.ncadd.org

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ADA InfoLine—U.S. Department of Justice
1(800) 514-0301 (V, English/Spanish)
1(800) 514-0383 (TTY)
www.usdoj.gov/crt/ada/adahom1.htm

Center for Universal Design
1(800) 647-6777
www.design.ncsu.edu/cud

Disability & Business Technical Assistance Centers
1(800) 949-4232 (V/TTY)
www.adata.org/centers.htm

Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)
www.eeoc.gov

Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
http://janweb.icdi.wvu.edu

U.S. Access Board
1(800) 872-2253 (V)
1(800) 993-2822 (TTY)
www.access-board.gov

U.S. Department of Housing and Urban Development—HUD User
1(800) 245-2691 (V)
1(800) 927-7589 (TTY)
www.huduser.org

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ABLEDATA
1(800) 227-0216
www.abledata.com

AbleNet
1(800) 322-0956
www.ablenetinc.com

Alliance for Technology Access   
1(800) 914-3017
www.ataccess.org

Apple Store for Education
1(800) MY APPLE (692-7753)
www.apple.com/education/accessibility

IBM Accessibility Center
1(800) 426-4832 (V); 1(800) 426-4833 (TTY)
www.ibm.com/able

National Lekotek Center's Toy Resource Helpline
1(800) 366-7529 (V); 1(800) 573-4446 (TTY)
www.lekotek.org

Georgia Tech Center for Assistive Technology and Environmental Access (CATEA)
1(800) 726-9119 (V/TTY)
www.assistivetech.net

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American Council of the Blind
1(800) 424-8666
(English/Spanish)
www.acb.org/

American Foundation for the Blind
1(800) 232-5463
www.afb.org

American Printing House for the Blind
1(800) 223-1839
www.aph.org/

Blind Childrens Center
1(800) 222-3566
www.blindcntr.org/

Library Reproduction Service
1(800) 255-5002
www.lrs-largeprint.com/

Lighthouse International
1(800) 829-0500 (V)
1(212) 821-9713 (TTY)
www.lighthouse.org/

National Association for Parents of Children with Visual Impairments
1(800) 562-6265
www.spedex.com/napvi/

National Library Service for the Blind and Physically Handicapped
1(800) 424-8567
www.loc.gov/nls/

Prevent Blindness America
1(800) 331-2020
www.preventblindness.org/

Recording for the Blind and Dyslexic
1(800) 221-4792
www.rfbd.org/

The Foundation Fighting Blindness   
1(888) 394-3937 (V)
1(800) 683-5555 (TTY)
www.blindness.org/

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Burn Survivors Throughout the World
1(800) 503-8058
www.burnsurvivorsttw.org/

Phoenix Society for Burn Survivors
1(800) 888-2876
www.phoenix-society.org/

Shriners Hospitals for Children
1(800) 237-5055
www.shrinershq.org/

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American Cancer Society
1(800) 227-2345 (English/Spanish)
www.cancer.org

American Cancer Research Center
Cancer Information and Counseling Line
1(800) 525-3777
www.amc.org/

Candlelighters Childhood Cancer Foundation
1(800) 366-2223
www.candlelighters.org/

National Brain Tumor Foundation
1(800) 934-2873 (English/Spanish)
www.braintumor.org/

National Cancer Institute Information Service
1(800) 422-6237 (V; English/Spanish)
1(800) 332-8615 (TTY)
http://cis.nci.nih.gov/

Support for People with Oral and Head and Neck Cancer
1(800) 377-0928
www.spohnc.org/

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National Center for Missing and Exploited Children
1(800) 843-5678 (V; English/Spanish)
1(800) 826-7653 (TTY)
www.missingkids.com/

National Child Abuse Hotline
1(800) 422-4453
www.childhelpusa.org/

National Clearinghouse on Child Abuse and Neglect Information
1(800) 394-3366 (English/Spanish)
http://nccanch.acf.hhs.gov/

Prevent Child Abuse America
1(800) 244-5373 (English/Spanish)
www.preventchildabuse.org/

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Child Care

Child Care Aware
1(800) 424-2246 (English/Spanish)
www.childcareaware.org

National Child Care Information Center
1(800) 616-2242 (V; English/Spanish)
1(800) 516-2242 (TTY)
http://nccic.org/

National Resource Center for Health and Safety in Child Care
1(800) 598-5437
http://nrc.uchsc.edu/

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American Speech-Language-Hearing Association   
1(800) 638-8255
www.asha.org

Communication Aid Manufacturers Association
1(800) 441-2262
www.aacproducts.org/index.lasso

National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V; English/Spanish)
1(800) 241-1055 (TTY)
www.nidcd.nih.gov/

National Stuttering Association
1(800) 937-8888
www.nsastutter.org/

Stuttering Foundation of America
1(800) 992-9392
www.stuttersfa.org

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Aboutface USA   
1(888) 486-1209
www.aboutfaceusa.org

Children's Craniofacial Association
1(800) 535-3643
www.ccakids.org/

Craniofacial Foundation of America
1(800) 418-3223
www.craniofacialcenter.com

FACES—National Craniofacial Association
1(800) 332-2373
www.faces-cranio.org/

Foundation for Nager and Miller Syndromes
1(800) 507-3667
www.nagerormillersynd.com

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Air Care Alliance   
1(888) 260-9707
www.aircareall.org

Angel Flight America   
1(877) 858-7788
www.angelflightamerica.org

National Hopeline Network
1(800) SUICIDE (784-2433)
www.hopeline.com/

National Suicide Prevention Lifeline   
1(800) 273-TALK (8255)
1(800) 799-4TTY (4889) (TTY)
www.suicidepreventionlifeline.org/

Nineline Crisis Hotline
1(800) 999-9999
www.nineline.org/

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Alexander Graham Bell   
Association for the Deaf and Hard of Hearing
1(866) 337-5220
www.agbell.org

American Academy of Audiology   
1(800) 222-2336
www.audiology.org

American Society for Deaf Children
1(800) 942-2732 (V/TTY)
www.deafchildren.org/

American Speech-Language-Hearing Association   
1(800) 638-8255
www.asha.org

Better Hearing Institute
1(800) 327-9355 (V/TTY)
www.betterhearing.org

Hear Now
1(800) 648-4327 (V/TTY)
www.sotheworldmayhear.org

Hearing Aid Helpline
1(800) 521-5247 (V/TTY)
http://ihsinfo.org

John Tracy Clinic
1(800) 522-4582 (V/TTY; English/Spanish)
1(213) 748-5481 (V; in 213 area)
1(213) 747-2924 (TTY; in 213 area)
www.johntracyclinic.org/

National Cued Speech Association
1(800) 459-3529
www.cuedspeech.org

National Information Clearinghouse on Children Who are Deaf-Blind (DB-LINK)
1(800) 438-9376 (V)
1(800) 854-7013 (TTY)
www.tr.wou.edu/dblink

National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V; English/Spanish)
1(800) 241-1055 (TTY)
www.nidcd.nih.gov

Postsecondary Education Programs Network Resource Center (PEPNet)
1(888) 684-4695 (V/TTY)
http://prc.csun.edu/

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Best Buddies   
1(800) 89 BUDDY (892-8339)
www.bestbuddies.org

Kids on the Block
1(800) 368-5437
www.kotb.com

Friends Who Care (from Easter Seals)   
1(800) 221-6827
www.easterseals.com

VSA arts   
1(800) 933-8721
www.vsarts.org

Yes I Can! Foundation for Exceptional Children   
1(800) 224-6830, Ext. 450
http://yesican.sped.org

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American Association for Vocational Instructional Materials
1(800) 228-4689
www.aavim.com

Association for Career & Technical Education
1(800) 826-9972 (V/TTY)
www.acteonline.org/

Association for Childhood Education International
1(800) 423-3563
www.acei.org

The Center for Comprehensive School Reform and Improvement   
1(877) 277-2744
www.csrclearinghouse.org/

Early Childhood and Parenting Collaborative   
1(877) 275-3227 (V/TTY)
http://ecap.crc.uiuc.edu/

ERIC System (Educational Resources Information Center)
1(800) 538-3742
www.eric.ed.gov

Federal Student Aid Information Center
1(800) 433-3243 (V; English/Spanish)
1(800) 730-8913 (TTY)
http://studentaid.ed.gov/

HEATH Resource Center (for information on post-secondary education for individuals with disabilities)
1(800) 544-3284 (V/TTY)
www.heath.gwu.edu

National Alliance of Black School Educators
1(800) 221-2654
www.nabse.org

National Association for the Education of Young Children (NAEYC)
1(800) 424-2460
www.naeyc.org

National Clearinghouse for English Language Acquisition & Language Instruction Educational Programs (NCELA)
1(800) 321-6223
www.ncela.gwu.edu

National Information Center for Educational Media
1(800) 926-8328 (V/TTY)
www.nicem.com/

National Institute for Literacy - Literacy Hotline   
1(800) 228-8813 (V; English/Spanish)
1(877) 576-7734 (TTY)
www.nifl.gov

National Library of Education (NLE)
1(800) 424-1616 (English/Spanish)
www.ed.gov/NLE

National Middle School Association
1(800) 528-6672
www.nmsa.org

U.S. Department of Education Information Resource Center   
1(800) 872-5327 (V; English/Spanish)
1(800) 437-0833 (TTY)
www.ed.gov/about/offices/list/oiia/irc.html

Also see "Literacy."

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Disabled and Alone, Inc.   
1(800) 995-0066
www.disabledandalone.org

Education, Career, and Community Program (a program of the Northwest Regional Educational Laboratory)
1(800) 547-6339
www.nwrel.org/

Employer Assistance Referral Network   
1(866) 327-6669 (V/TTY)
www.earnworks.com

Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)
www.eeoc.gov

Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
http://janweb.icdi.wvu.edu

National Center on Workforce and Disability/Adult
1(888) 886-9898 (V/TTY)
www.onestops.info/

National Collaborative on Workforce and Disability/Youth   
1(877) 871-0744
www.ncwd-youth.info/

National Council on Independent Living   
1(877) 525-3400
www.ncil.org

National Resource Center on Supported Living and Choice: Center on Human Policy   
1(800) 894-0826
http://thechp.syr.edu/nrc.html

Proyecto Visión Hotline   
1(866) EMPLEO 1 (1-866-367-5361)
www.proyectovision.net

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National Foundation for Consumer Credit
1(800) 388-2227
1(800) 682-9832 (Spanish)
www.nfcc.org

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Caring Connections   
1(800) 658-8898
www.caringinfo.org

Children's Hospice International
1(800) 242-4453 (V/TTY)
www.chionline.org

Hospice Education Institute
1(800) 331-1620
www.hospiceworld.org

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ABLEDATA (for information on assistive technology)
1(800) 227-0216 (V/TTY)
www.abledata.com

HRSA Information Center (U.S. Dept. of Health & Human Services)   
1(888) 275-4772 (V; English/Spanish)
1 (877) 489-4772 (TTY)
www.ask.hrsa.gov

March of Dimes   
1(888) 663-4637 (English/Spanish)
www.marchofdimes.com

National Center on Birth Defects and Developmental Disabilities   
1(800) CDC-INFO (232-4636)
www.cdc.gov/ncbddd/

National Center on Low-Incidence Disabilities (NCLID)   
1(800) 395-2693 (V/TTY)
http://nclid.unco.edu/newnclid/

National Dissemination Center for Children with Disabilities (NICHCY)
1(800) 695-0285 (V/TTY; English/Spanish)
www.nichcy.org

National Health Information Center
1(800) 336-4797
www.health.gov/nhic

National Lead Information Center
1(800) 424-5323 (English/Spanish)
www.epa.gov/lead/nlic.htm

National Library of Medicine
1(888) 346-3656
www.nlm.nih.gov

Office of Minority Health Resource Center
1(800) 444-6472 (English/Spanish)
www.omhrc.gov/

Zero to Three/National Center for Infants, Toddlers, and Families
1(800) 899-4301
www.zerotothree.org/

Also see "Medical / Health Disorders" for Information Centers addressing specific health disorders.

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National Institute for Literacy - Literacy Hotline   
1(800) 228-8813 (V; English/Spanish)
1(877) 576-7734 (TTY)
www.nifl.gov

ProLiteracy Worldwide
1(888) 528-2224 (English/Spanish)
www.proliteracy.org/

Reading is Fundamental
1(877) 743-7323
www.rif.org

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American Academy of Allergy, Asthma, and Immunology
1(800) 822-2762
www.aaaai.org

American Association of Kidney Patients
1(800) 749-2257
www.aakp.org

American Behcet's Disease Association
1(800) 7 BEHCETS (723-4238)
www.behcets.com

American Brain Tumor Association
1(800) 886-2282
http://hope.abta.org/

American Cancer Society
1(800) 227-2345 (English/Spanish)
www.cancer.org

American Diabetes Association
1(800) 342-2383 (English/Spanish)
www.diabetes.org

American Heart Association
1(800) 242-8721 (English/Spanish)
www.americanheart.org

American Kidney Fund
1(800) 638-8299
www.kidneyfund.org

American Liver Foundation   
1(800) GO LIVER (465-4837)
1(888) 4HEP USA (443-7872)
www.liverfoundation.org

American Lung Association
1(800) 586-4872 (English/Spanish)
www.lungusa.org

American Stroke Association
1(888) 478-7653
www.strokeassociation.org

American Syringomyelia Alliance Project   
1(800) 272-7282
www.asap.org

Angioma Alliance   
1(866) 432-5226
www.angiomaalliance.org

Aplastic Anemia & MDS International Foundation
1(800) 747-2820 (English/Spanish)
www.aamds.org

Arthritis Foundation
1(800) 568-4045
www.arthritis.org

Asthma and Allergy Foundation of America
1(800) 727-8462
www.aafa.org

Celiac Sprue Association
1(877) CSA-4CSA (272-4272)
www.csaceliacs.org

Children's Tumor Foundation (formerly the National Neurofibromatosis Foundation)
1(800) 323-7938 (English/Spanish)
www.ctf.org

Chronic Fatigue and Immune Dysfunction Syndrome Association (CFIDS)
1(800) 442-3437
www.cfids.org

Cleft Palate Foundation
1(800) 24 CLEFT (242-5338)
www.cleftline.org

Cooley’s Anemia Foundation
1(800) 522-7222
www.thalassemia.org

Crohn's and Colitis Foundation of America
1(800) 932-2423
www.ccfa.org

Cystic Fibrosis Foundation
1(800) 344-4823
www.cff.org

Cystinosis Foundation
1(800) 392-8458
www.cystinosisfoundation.org

Dystrophic Epidermolysis Bullosa Research Association of America (DebRA)   
1(866) 332-7276 (nurse line)
www.debra.org

Epilepsy Foundation
1(800) 332-1000 (English/Spanish)
www.epilepsyfoundation.org

Family Voices: A National Coalition Speaking for Children with Special Health Care Needs
1(888) 835-5669
www.familyvoices.org

First Candle/SIDS Alliance   
1(800) 221-7437
www.sidsalliance.org/

Foundation for Ichthyosis and Related Skin Types
1(800) 545-3286
www.scalyskin.org/

Huntington's Disease Society of America
1(800) 345-4372
www.hdsa.org

Immune Deficiency Foundation
1(800) 296-4433
www.primaryimmune.org

International Foundation for Functional Gastrointestinal Disorders
1(888) 964-2001
www.iffgd.org

Juvenile Diabetes Research Foundation International   
1(800) 533-CURE (2873)
www.jdrf.org/

Kennedy Krieger Institute
1(888) 554-2080
www.kennedykrieger.org/

Leukemia and Lymphoma Society
1(800) 955-4572
www.leukemia-lymphoma.org

Lupus Foundation of America
1(800) 558-0121
1(800) 558-0231 (Spanish)
www.lupus.org

Lyme Disease Foundation Hotline
1(800) 886-LYME (5963)
www.lyme.org/index.html

MAGIC Foundation (Major Aspects of Growth Disorders In Children)   
1(800) 3 MAGIC 3 (362-4423)
www.magicfoundation.org

Malignant Hyperthermia Association   
1(800) 644-9737
www.mhaus.org

March of Dimes
1(888) 663-4637 (English/Spanish)
www.marchofdimes.com

National Association of Hospital Hospitality Houses (NAHHH)
1(800) 542-9730
www.nahhh.org/

National Brain Tumor Foundation
1(800) 934-2873 (English/Spanish)
www.braintumor.org/

National Diabetes Information Clearinghouse
1(800) 860-8747
http://diabetes.niddk.nih.gov

National Digestive Diseases Information Center
1(800) 891-5389
www.niddk.nih.gov

National Eating Disorders Association
1(800) 931-2237
www.nationaleatingdisorders.org

National Foundation for Transplants
1(800) 489-3863
www.transplants.org

National Health Information Center
1(800) 336-4797
www.health.gov/nhic

National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (English/Spanish)
www.nhlbi.nih.gov

National Hemophilia Foundation   
1 (800) 424-2634
www.hemophilia.org

National Institute of Arthritis and Musculoskeletal and Skin Diseases Clearinghouse
1(877) 226-4267 (English/Spanish)
www.niams.nih.gov

National Institute of Child Health and Human Development  
1(800) 370-2943
www.nichd.nih.gov

National Jewish Medical and Research Center
1(800) 222-5864
www.njc.org/

National Kidney Foundation
1(800) 622-9010
www.kidney.org

National Lymphedema Network
1(800) 541-3259
www.lymphnet.org

National Marfan Foundation
1(800) 8 MARFAN (862-7326)
www.marfan.org

National Multiple Sclerosis Society   
1(800) 344-4867
1(866) KIDS W MS (543-7967) (English/Spanish)
www.nmss.org

National Organization for Albinism and Hypopigmentation
1(800) 473-2310
www.albinism.org

National Patient Travel Helpline
1(800) 296-1217
www.patienttravel.org/

National Scoliosis Foundation
1(800) 673-6922
www.scoliosis.org

National Tay-Sachs & Allied Diseases Association
1(800) 906-8723
www.ntsad.org

Neurofibromatosis, Inc.
1(800) 942-6825
www.nfinc.org/

Osteogenesis Imperfecta Foundation
1(800) 981-2663
www.oif.org

Oxalosis & Hyperoxaluria Foundation
1(800) OHF-8699 (643-8699)
www.ohf.org

Scleroderma Foundation
1(800) 722-4673
www.scleroderma.org

Shriners Hospital for Children
1(800) 237-5055
www.shrinershq.org/

Sickle Cell Disease Association of America
1(800) 421-8453
www.sicklecelldisease.org

United Leukodystrophy Foundation
1(800) 728-5483
www.ulf.org/

United Ostomy Association
1(800) 826-0826
www.uoa.org

Vestibular Disorders Association
1(800) 837-8428
www.vestibular.org

Weight-Control Information Network (WIN)   
1(877) 946-4627
http://win.niddk.nih.gov/index.htm

Williams Syndrome Association
1(800) 806-1871
www.williams-syndrome.org

Wilson's Disease Association
1(800) 399-0266
www.wilsonsdisease.org

Also see "Specific Disabilities" resources.

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American Psychiatric Association   
1(888) 35 PSYCH (357-7924)
www.psych.org

American Psychological Association's Consumer Help Center   
1(800) 964-2000
www.apahelpcenter.org

Depression and Bipolar Support Alliance   
1(800) 826-3632
www.dbsalliance.org

Families Anonymous   
1(800) 736-9805
www.familiesanonymous.org

National Alliance for the Mentally Ill
1(800) 950-6264 (English/Spanish)
www.nami.org/

National Association for the Dually Diagnosed
1(800) 331-5362
www.thenadd.org

National Hopeline Network
1(800) SUICIDE (784-2433) (English/Spanish)
www.hopeline.com/

National Institute of Mental Health (NIMH) Information Center
1(866) 615-6464 (English/Spanish)
www.nimh.nih.gov/

National Mental Health Association
1(800) 969-6642 (V; English/Spanish)
1(800) 433-5959 (TTY)
www.nmha.org/

National Mental Health Consumer Self-Help Clearinghouse
1(800) 553-4539 (English/Spanish)
www.mhselfhelp.org

National Mental Health Information Center
1(800) 789-2647 (English/Spanish)
www.mentalhealth.org/

National Suicide Prevention Lifeline   
1(800) 273-TALK (8255)
1(800) 799-4TTY (4889) (TTY)
www.suicidepreventionlifeline.org/

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Gates Millennium Scholars
1(877) 690-4677
www.gmsp.org

Hispanic Scholarship Fund
1(877) 473-4636
www.hsf.net

National Alliance of Black School Educators
1(800) 221-2654
www.nabse.org

National Clearinghouse for English Langugage Acquisition (NCELA)
1(800) 321-6223
www.ncela.gwu.edu

National Native American Families Together Parent Center   
1(877) 205-7501
www.nativefamilynetwork.com/

Office of Minority Health Resource Center
1(800) 444-6472 (English/Spanish)
www.omhrc.gov/

Proyecto Visión Hotline   
1(866) Empleo 1 (367-5361)
www.proyectovision.net/

Parent Support   

Compassionate Friends (grief support after the death of a child)
1(877) 969-0010
www.compassionatefriends.org

MUMS: National Parent to Parent Network
1(877) 336-5333
www.netnet.net/mums/

National Organization of Mothers of Twins Clubs
1(877) 540-2200
www.nomotc.org

Parent Advocacy Coalition for Educational Rights (PACER Center)
1(888) 248-0822
www.pacer.org

Special Needs Advocate for Parents (SNAP)
1(888) 310-9889
www.snapinfo.org

Specialized Training of Military Parents (STOMP)
1(800) 5 PARENT (572-7368)
www.stompproject.org

Through the Looking Glass
1(800) 644-2666
www.lookingglass.org

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Physical Disabilities

Canine Companions for Independence   
1(800) 572-BARK (2275)
www.caninecompanions.org

Christopher and Dana Reeve Paralysis Resource Center
1(800) 539-7309
www.paralysis.org

Courage Center
1(888) 846-8253
www.courage.org

Craniofacial Foundation of America
1(800) 418-3223
www.craniofacialcenter.com

Easter Seals—National Office
1(800) 221-6827 (V)
1(312) 726-4258 (TTY)
www.easterseals.com

Families of Spinal Muscular Atrophy   
1(800) 886-1762
www.fsma.org

Human Growth Foundation
1(800) 451-6434
www.hgfound.org

Muscular Dystrophy Association
1(800) 572-1717
www.mdausa.org/

National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1(877) 226-4267
www.niams.nih.gov

National Library Service for the Blind and Physically Handicapped
1(800) 424-8567
www.loc.gov/nls/

National Limb Loss Information Center
1(888) 267-5669 (English/Spanish)
www.amputee-coalition.org/

National Scoliosis Foundation
1(800) 673-6922
www.scoliosis.org

National Spasmodic Torticollis Association
1(800) 487-8385
www.torticollis.org

National Spinal Cord Injury Hotline
1(800) 962-9629
www.spinalcord.org

Pathways Awareness Foundation
1(800) 955-2445
www.pathwaysawareness.org

Spina Bifida Association of America
1(800) 621-3141 (English/Spanish)
www.sbaa.org

United Cerebral Palsy Associations
1(800) 872-5827
www.ucp.org/

Winners on Wheels (WOW)   
1(800) WOW-Talk (969-8255)
www.wowusa.com

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Genetic Alliance
1(800) 336-4363
http://geneticalliance.org

Genetic & Rare Diseases Information Center
1(888) 205-2311 (V; English/Spanish)
1(888) 205-3223 (TTY)
http://rarediseases.info.nih.gov/

National Organization for Rare Disorders (NORD)
1(800) 999-6673 (V/TTY)
www.rarediseases.org/

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Adventures in Movement for the Handicapped
1(800) 332-8210
www.aimforthehandicapped.org/

Best Buddies   
1(800) 89 BUDDY 892-8339
www.bestbuddies.org

Girl Scouts of the USA
1(800) 478-7248
www.girlscouts.org

National Center on Physical Activity and Disability
1(800) 900-8086 (V/TTY)
www.ncpad.org

National Lekotek Center's Toy Resource Helpline
1(800) 366-7529 (V)
1(800) 573-4446 (TTY)
www.lekotek.org

North American Riding for the Handicapped, Inc.
1(800) 369-7433
www.narha.org

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ABLEDATA
1(800) 227-0216 (V/TTY)
www.abledata.com

ADED: Association for Driver Rehabilitation Specialists
1(800) 290-2344
www.driver-ed.org

National Clearinghouse of Rehabilitation Training Materials
1(800) 223-5219
www.nchrtm.okstate.edu

National Rehabilitation Information Center
1(800) 346-2742
www.naric.com

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American Lung Association
1(800) 586-4872
www.lungusa.org

National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (English/Spanish)
www.nhlbi.nih.gov

National Jewish Medical & Research Center
1(800) 222-5864
www.njc.org/

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National Family Caregivers Association   
1(800) 896-3650
www.thefamilycaregiver.org

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Rural Institute on Disabilities
1(800) 732-0323
http://ruralinstitute.umt.edu/

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American Association on Mental Retardation
1(800) 424-3688 (outside Metro DC area)
(202) 387-1968 (in DC)
www.aamr.org

Angelman Syndrome Foundation
1(800) 432-6435
www.angelman.org/angel/

The Arc of the United States   
1(800) 433-5255
www.thearc.org

Autism Society of America
1(800) 3 AUTISM (328-8476)
www.autism-society.org

Beckwith Wiedemann Support Network
1(800) 837-2976
http://beckwith-wiedemann.org

Brain Injury Association Family Helpline
1(800) 444-6443 (English/Spanish)
www.biausa.org

Center for the Study and Treatment of Usher Syndrome at Boys Town National Research Hospital
1(800) 835-1468 (V/TTY)
www.boystownhospital.org

Charge Syndrome Foundation   
1(800) 442-7604
www.chargesyndrome.org

Children and Adults with Attention-Deficit/ Hyperactivity Disorder (CHADD)
1(800) 233-4050
(301) 306-7070 (in Washington, DC metro area)
www.chadd.org

Cornelia de Lange Syndrome Foundation
1(800) 223-8355
(860) 676-8166 (in CT)
www.cdlsusa.org

Family Empowerment Network: Support for Families Affected by FAS/E
1(800) 462-5254 (for families)
www.fammed.wisc.edu/fen

Fetal Alcohol Spectrum Disorders Center   
1(866) 786-7327
www.fascenter.samhsa.gov/index.cfm

International Dyslexia Association
1(800) 222-3123
www.interdys.org

International Rett Syndrome Association
1(800) 818-7388
www.rettsyndrome.org

Learning Disabilities Association of America
1(888) 300-6710
www.ldaamerica.org

Little People of America
1(888) 572-2001
www.lpaonline.org

National Center for Learning Disabilities
1(888) 575-7373
www.ncld.org/

National Down Syndrome Congress
1(800) 232-6372
www.ndsccenter.org/

National Down Syndrome Society
1(800) 221-4602 (English/Spanish)
www.ndss.org/

National Fragile X Foundation
1(800) 688-8765
www.fragilex.org

National Gaucher Foundation
1(800) 428-2437
www.gaucherdisease.org/

National Niemann-Pick Disease Foundation
1(877) 287-3672
www.nnpdf.org/

National Organization on Fetal Alcohol Syndrome
1(800) 666-6327
www.nofas.org

National Reye's Syndrome Foundation
1(800) 233-7393
www.reyessyndrome.org

National Stuttering Association
1(800) 937-8888
www.nsastutter.org

Prader-Willi Syndrome Association
1(800) 926-4797
www.pwsausa.org

Spina Bifida Association of America
1(800) 621-3141 (English/Spanish)
www.sbaa.org

Sturge-Weber Foundation
1(800) 627-5482
www.sturge-weber.com/

Stuttering Foundation of America
1(800) 992-9392
www.stuttersfa.org

Support Organization for Trisomy 18, 13, and Related Chromosomal Disorders
1(800) 716-7638
www.trisomy.org

Tuberous Sclerosis Alliance
1(800) 225-6872
www.tsalliance.org/

United Cerebral Palsy Associations
1(800) 872-5827
www.ucp.org/

Williams Syndrome Association
1(800) 806-1871
www.wsf.org/

Also see resources for "Medical/Health Disorders."

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American Foundation for Suicide Prevention
1(888) 333-2377
www.afsp.org

National Hopeline Network
1(800) SUICIDE (784-2433)
www.hopeline.com

National Suicide Prevention Lifeline   
1(800) 273-TALK (8255)
www.suicidepreventionlifeline.org

Nineline Crisis Hotline
1(800) 999-9999
www.nineline.org

See also "Crisis Intervention" and "Mental Health" resources.

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Social Security Administration
1(800) 772-1213 (V; English/Spanish)
1(800) 325-0778 (TTY)
www.ssa.gov/

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American Trauma Society
1(800) 556-7890
www.amtrauma.org/

Brain Injury Association Family Helpline
1(800) 444-6443
www.biausa.org

National Spinal Cord Injury Association
1(800) 962-9629
www.spinalcord.org

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Believe in Tomorrow National Children's Foundation
1(800) 933-5470
www.believeintomorrow.org

Sunshine Foundation
1(800) 767-1976
http://sunshinefoundation.org/

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