A Web resource page of the National Dissemination
Center for Children with Disabilities
NICHCY Connections...
to Information in Spanish
on Disability Conditions
January 28, 2004
Approx. 13 pages when printed
Versión en español
NICHCY is pleased to connect you with sources of information and assistance
in Spanish on specific disability conditions. This page is presented
here in English to help people looking for Spanish materials
to share with their Spanish-speaking families. For our Spanish-speaking visitors,
we also offer this page completely in Spanish, at:
www.nichcy.org/resources/sp-spdisabcond.asp
The resources
we've listed focus exclusively on specific conditions such
as AD/HD or learning disabilities. Use the Table of Contents above to see what
disabilities are covered and to jump to the one in which you're interested.
Wondering what's available in Spanish on disability topics, such as
assistive technology, special education, evaluation, or IEPs? Visit our separate
Connections page on disability conditions, available at:
www.nichcy.org/resources/spanishtopics.asp.
The list below isn't intended to be exhaustive of the Spanish-language resources
on disability conditions available---we'll be adding to this page constantly.
So check back often to see what's new!
AD/HD (Attention-Deficit/Hyperactivity Disorder)
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Asperger Syndrome
- Medical info in Spanish about Asperger Syndrome.
www.nlm.nih.gov/medlineplus/spanish/ency/article/001549.htm
From the Medical Library of the United States, courtesy of Medline Plus in
Spanish, "Enfermedad de Asperger" briefly discusses, from a medical
perspective, definition of AS, and its characteristics, alternate names, diagnostic
exams, treatment, prognosis, and prevention.
- Fact sheet on AS in Spanish.
www.aacap.org/publications/apntsfam/fff69.htm
This fact sheet, called Desorden de Asperger, is courtesy of the American
Academy of Child and Adolescent Psychiatry.
- A treasure chest of Spanish materials on Asperger Syndrome.
www.autismo.com
Visit Asociación Nuevo Horizonte and find piles of information in Spanish
on the disorders under the umbrella of PDD. Because it can be a little difficult
to find what you're looking for on the site, we've listed and linked below
some of the major titles you'll find on AS.
- The Spanish version of "When your child is diagnosed with an autism spectrum
disorder."
www.iidc.indiana.edu/irca/fspanish.html
"Cuando su niño/niña es diagnosticado con alguno de los
desórdenes en la gama del autismo" is the Spanish title of this
publication from the Indiana Resource Center for Autism.
- El Síndrome de Asperger.
www.autism-society.org/site/PageServer?pagename=espanol_asperger
This description is courtesy of the Autism Society of America.
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Asthma / Allergies
- Go to the authorities on the subject.
www.aaaai.org/patients/resources/spanish.stm
Who better than the American Academy of Allergy, Asthma, and Immunology, where
you'll find tons of information in Spanish, including children's storybooks,
easy-to-read fact sheets, and tip brochures for preventing and treating asthma
and allergies.
- More info about asthma.
www.kidshealth.org/parent/en_espanol/index.html
Go to the KidsHealth site at the link above, and find the online briefs Todo
Sobre las Alergias (All about Allergies) and Control del Asma (Managing
Asthma).
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Autism
- El Autismo, NICHCY's autism factsheet.
www.nichcy.org/pubs/spanish/fs1stxt.htm
- Try AutismOnline.
www.autismonline.org
AutismOnline connects the parents of newly diagnosed children with autism
and professionals working with these children with critical resources, support,
and research information in their own language. Find resources in Spanish
at: www.autismonline.org/bookspan.htm
- Visit Asociación Nuevo Horizonte.
www.autismo.com
Find information on autism in English and Spanish, videos, books, links to
other organizations, statistics and a chat!
- Visit the Indiana Resource Center for Autism (IRCA).
www.iidc.indiana.edu/irca
The IRCA offers a wide range of materials in English on autism and related
disorders. A substantial overview is available in Spanish at: www.iidc.indiana.edu/irca/fspanish.html
- NINDS is the National Institute on Neurological Disorders and Stroke.
www.ninds.nih.gov/disorders/spanish/autismo.htm
NINDS offers an extensive fact sheet on autism in Spanish.
- From the commercial publisher, Woodbine House.
www.woodbinehouse.com
Woodbine House offers Niños Autistas: Guía para Padres, Terapeutas
y Educadores, a book looking at how autism can affect the first six years
of a child's life. Contact Woodbine House via the Web site address above,
or through their toll-free number: 1.800.843.7323.
- Información general sobre el autismo.
www.autism-society.org/site/PageServer
This description is courtesy of the Autism Society of America.
- Medical info in Spanish about autism.
www.nlm.nih.gov/medlineplus/spanish/ency/article/001526.htm
From the Medical Library of the United States, courtesy of Medline Plus in
Spanish, "Autismo" briefly discusses, from a medical perspective,
the definition of autism and its characteristics, alternate names, diagnostic
exams, treatment, prognosis, and prevention.
- The child with autism, in Spanish.
www.aacap.org/publications/apntsfam/autistic.htm
This fact sheet, called El Niño Autista, appears online courtesy
of the American Academy of Child and Adolescent Psychiatry.
- The Spanish version of "When your child is diagnosed with an autism
spectrum disorder."
www.iidc.indiana.edu/irca/fspanish.html
"Cuando su niño/niña es diagnosticado con alguno de los
desórdenes en la gama del autismo" is the Spanish title of this
publication from the Indiana Resource Center for Autism.
- Looking at the genetics of autism (in Spanish).
www.exploringautism.org/spanish/
- A treasure chest of Spanish materials on autism.
www.autismo.com/scripts/articulo/slistaesp.idc?
Visit Asociación Nuevo Horizonte and find piles of information in Spanish
on the disorders under the umbrella of PDD. The link above takes you to a
list of articles on autism in Spanish ("Artículos sobre autismo
en español"). Some of the major titles you'll find in the list
include:
- On Rett syndrome.
www.nichd.nih.gov/publications/pubs/autism/espanol/Rett/index.htm
Rett syndrome is placed clinically under the spectrum of pervasive developmental
disorders (PDD), as is autism.
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Blindness / Visual Impairments
- Visit the National Eye Institute (NEI).
www.nei.nih.gov/health/espanol/index.asp
Tthe NEI was established by Congress in 1968. It conducts and supports research
that helps prevent and treat eye diseases and other disorders of vision. Extensive
information is available in Spanish on low vision, cataracts, macular degeneration,
visual issues associated with diabetes, and glaucoma.
- Lots of info at NOAH!
www.noah-health.org/es/eye/
NOAH is the New York Online Access to Health. Its Web site in Spanish connects
you to Spanish language resources from many different sources on visual impairment,
including: basic information about the eye, a glossary of terms, low vision
fact sheets, eye disorders, diagnosis, and treatments.
- Go here for a large list of eye-related issues.
www.nlm.nih.gov/medlineplus/spanish/eyesandvision.html
Find out about the eye's anatomy and conditions such as astigmatism, cancer,
problems with vision, including blindness, macular degeneration, and much
more.
- The Blind Children's Center.
www.blindchildrenscenter.org
Information in Spanish can be ordered from the Blind Children's Center, including:
the 12-page Heart to Heart (where parents of children who are blind
and partially sighted talk about their feelings); the 28-page Let's Eat:
Feeding a child with a Visual Impairment
(how to teach feeding skills to children with visual impairments); the 12-page
Move with Me (a parent's guide to movement development for babies
who are visually impaired); the 11-page Talk to Me (a language guide
for parents of children who are visually impaired) and the 15-page sequel
Talk to Me II;. and the 28-page Selecting a Program (a guide
for parents of infants and preschoolers with visual impairments). Access an
order form at: www.blindchildrenscenter.org/pubs.htm
- For grandparents of children with visual impairments.
www.spedex.com/napvi/index_sp.htm
National Association for Parents of Children with Visual Impairments (NAPVI)
offers a mirror home page in Spanish that leads back to their English site.
The Spanish publication In Celebration of Grandparenting (Celebrando El
Ser Abuelos) is available to help grandparents of children with visual
impairments or blindness better understand how they can engage constructively
in direct and indirect support of their loved ones dealing with visual impairment.
Find out more about this resource and order at: www.spedex.com/napvi/order.html.
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Childhood Disintegrative Disorder
- Criteria for CDD in Spanish.
http://biblioteca.consultapsi.com/DSM/Dsmdes.htm
This link will take you to the DSM criteria in Spanish (courtesy of a site
in Argentina) for all five of the disorders under the umbrella of PDD.
- Trastorno Desintegrativo de la Niñez.
www.autismo.com/scripts/articulo/smuestra.idc?n=nichcy
This is a translation of NICHCY's briefing paper on PDD. Scroll down and find
the description of childhood disintegration disorder and the DSM-IV criteria
for it. The rest of the paper will be helpful as well, as the treatments for
CDD and PDD are similar.
- A brief description in Spanish.
www.uam.es/personal_pdi/psicologia/adarraga/studs/
autismo/trastorno%20desintegrativo.htm
The link above will take you to a short description of CDD in Spanish. Then
click on the "Forward" link at the bottom, and go to a comparison
of CDD with other disorders (Comparación con Otros Trastornos).
- The Spanish version of "When your child is diagnosed with an autism
spectrum disorder."
www.iidc.indiana.edu/irca/fspanish.html
"Cuando su niño/niña es diagnosticado con alguno de los
desórdenes en la gama del autismo" is the Spanish title of this
publication from the Indiana Resource Center for Autism.
Volver al principio
Deafness / Hearing Impairments
- An introduction to hearing loss, including deafness, from NICHCY.
www.nichcy.org/pubs/spanish/fs3stxt.htm
For a quick read on hearing impairments, including deafness, and a list of
helpful resources and organizations, try our fact sheet in Spanish.
- Heard of the EHDI, the Early Hearing Detection and Intervention program?
www.cdc.gov/ncbddd/defaultspan.htm
The EHDI program is intended to identify children with hearing loss and intervene
early to prevent later problems with communication. Universal newborn hearing
screening is soooooooo important! Learn about EHDI at the National
Center on Birth Defects and Developmental Disabilities (NCBDDD), within the
CDC (Centers for Disease Control). Under NCBDDD's "Temas de Salud A-Z"
option of "Deficiencias del Desarrollo," you'll find the publication
Hearing Loss in Children (Audición Inadecuada en los Niños).
- Find your state's EHDI program.
www.infanthearing.org/states/index.html
Working from a map of the U.S., click on your state and find the contact information
for the person in your state that coordinates the early hearing detection
and intervention program. Also find out what hospitals in the state report
screening for hearing loss at least 90% of the birth/admissions at the hospital.
- Access a treasure trove of information at the National Institute on
Deafness and Other Communication Disorders (NIDCD).
www.nidcd.nih.gov/health/spanish/index.asp
Find out about an incredibly wide range of subjects on hearing: aphasia, screening
an infant's hearing, hearing aids, cochlear implants, communication options,
tinnitus, ear infections, captioning, and much more.
- Basic introductory materials about hearing and language development,
hearing tests, and treatments for hearing loss.
www.asha.org
ASHA, the American Speech-Language-Hearing Association, offers Spanish versions
of several of its publications, including:
- Qué Tal Habla y Oye Su Niño? (How Well Does Your Child Hear and
Talk?) gives parents an overview of typical development of hearing
and speech skills, and where to get help for suspected problems or delays.
Read online at: www.asha.org/public/speech/development/child_hear_talk.htm
- Informaciones del Habla y Audición (para Niños) (Children's
Speech and Hearing Packet), which includes the following publications:
La Identificación Temprana de los Retrasos y Desórdenes
del Habla y el Lenguaje; Qué es una Evaluación Audiológica?;
Actividades Para Estimular el Desarrollo del Habla y el Lenguaje; Preguntas
y Repuestas Sobre el Lenguaje Infantil; Los Problemas de Articulación;
Otitis Media La Audición, y el Desarrollo del Lenguaje; Qué
Tal Habla y Oye Su Niño?; Tratamiento Para Los Trastornos de Audición;
Tratamiento Para Los Trastornos del Habla y Lenguaje
ASHA also offers guidance on children and bilingualism, on serving a multicultural
population, and on what's normal and what's not when an individual is learning
English as a second language. These latter publications are available in English
only.
- Need information on deaf-blindness?
www.tr.wou.edu/dblink
Contact DB-Link, the National Information Clearinghouse on Children Who Are
Deaf-Blind (El Centro de Información Nacional sobre Niños que son Sordos y
Ciegos), phone, 1.800.438.9376, and email, dblink@tr.wou.edu.
To find DB-Link's publications in Spanish, visit the home page and select
"DB-Link publications." This will take you the publications page;
next to each publication, there's the Spanish version!
- More info on deaf-blindess, from the Nevada Dual Sensory Impairment
Project.
www.unr.edu/educ/ndsip/index.html
Starting from the home page noted above, select "Fact Sheets." This
will lead you too all project publications on deaf-blindness in English translated
into Spanish.
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Down Syndrome
- National Down Syndrome Society (NDSS).
www.ndss.org
For an array of publications on Down syndrome and issues related to the disability,
visit the NDSS home page and click on "Información en Español."
- A guide for parents from a commercial publisher.
www.woodbinehouse.com
Woodbine House makes available a Spanish translation of its parent's guide
on Down syndrome, called Bébes con Síndrome de Down: Guía
para Padres. Contact Woodbine House via the Web site address above, or
through their toll-free number: 1.800.843.7323.
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Health Information
- For government and nonprofit health and human services information on
the Internet.
www.healthfinder.gov/
Healthfinder connects you with a range of health-related resources. The same
service is available in Spanish, at: www.healthfinder.gov/espanol/
- Su Familia: The National Hispanic Family Health Helpline.
www.hispanichealth.org/
Call 1.866.783.2645 and connect to free, reliable, and confidential health
information in Spanish and English. Give your zip code and be referred to
one of over 12,000 local health providers, including community and migrant
health centers. Fact sheets in Spanish are available on these health topics:
Cancer, Cancer Treatment, Lung Cancer, Cervical Cancer, Prostate Cancer, Colorectal
Cancer, Cardiovascular Disease, and Diabetes. From the home page, under "Resources,"
click on "Health Facts" and you'll see "Información
en español ."
- Information about health topics of all kinds.
http://medlineplus.gov/spanish
This site is a service of the U.S. National Library of Medicine and offers
everything from an online medical encyclopedia to interactive tutorials for
patients.
- More information about health topics of all kinds.
www.familydoctor.org
The American Academy of Family Physicians provides this site of "health
information for the whole family." For Spanish language materials, go
to: www.familydoctor.org/spanish.xml
- NOAH: New York Online Access to Health.
www.noah-health.org/
NOAH offers visitors online access to full-text health information on syndromes
and rare disorders. To find this information in Spanish, select (click on)
"Temas de salud" on the home page. You'll find info on health
conditions (e.g., asthma and allergies, blood disorders, cancer, diabetes,
digestive illnesses, hearing and balance, eyes and vision) and health issues
(e.g., alternative medicine, diagnostic tests and interventions).
- Birth defects and genetic conditions.
www.nacersano.org
Nacer Sano is the Spanish site of the March of Dimes. In their online Biblioteca
de Salud (Health Library), you'll find information in Spanish on a wide range
of birth defects and genetic disorders, including: sickle cell anemia, chromosomal
anomalies, heart defects, Tay-Sachs, spina bifida, cerebral palsy, hearing
loss, Down syndrome, Marfan syndrome, and Fragile X syndrome.
- Lookin' for information about respiratory illnesses and problems with
the immune system?
www.njc.org/spanish/main.html
Visit the National Jewish Medical and Research Center. It's the only medical
center in the U.S. dedicated entirely to the investigation and treatment of
respiratory illnesses. In addition to information on asthma and allergies,
you'll find materials in Spanish on AIDS, cancer, tuberculosis, emphysema,
and illnesses of the immune system, such as lupus.
- What does NIH (National Institutes of Health) have to say in Spanish?
http://salud.nih.gov
A lot! Go to the address above, click on "publicaciones," and view
"all" by either topic or the institute within NIH that produced
it.
- Lookin' for tips on how to prepare your child for a trip to the doctor
or for a hospital stay?
www.kidshealth.org/parent/en_espanol/index.html
Go to the KidsHealth site, at the link above.
- Interested in alternative medicine?
www.kidshealth.org/parent/en_espanol/index.html
KidsHealth offers a description in Spanish of the various types of alternative
medicine practices in its publication La Medicina Alternativa y su Hijo
(Alternative Medicine and Your Child).
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Learning Disabilities
- The amazing LDOnline site.
http://www.ldonline.org/
The link above will take you to the LDOnline page in English. On the menu
bar on the right, scroll down and select (click on) "Información
en Español."
- Dyslexia is a learning disability.
http://interdys.org
The International Dyslexia Association (IDA) offers seven publications in
Spanish on dyslexia, a learning disability that affects reading. To find these,
select "Información en Español" from the home
page noted above.
- Schwab Learning focuses on learning disabilities.
www.schwablearning.org/
A mirror site of Schwab's information on LD is provided in Spanish. Scroll
down to the bottom of the home page and select (click on ) "Español."
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Mental Health / Mental Illness
- American Academy for Child and Adolescent Psychiatry.
www.aacap.org
When you're on the above home page, scroll down to the bottom and on the menu
bar select "En Español." This will take you to the
American Academy's information fact sheets on emotional disorders (not copyrighted)
in English and Spanish.
- NAMI- National Alliance for the Mentally Ill.
www.nami.org
NAMI's Spanish publications can be accessed by going to the above link. On
the right menu bar, select (click on) "NAMI en Español."
You'll find information fact sheets and an (800) national information line
about programs, chapters, and support groups.
- Mentesana.com or healthinmind.com.
www.mentesana.com/
The HealthinMind and Mentesana sites are organized around the diagnostic categories
of the "Diagnostic and Statistical Manual of Mental Disorders" (fourth
edition, DSM-IV). From the home page, select "Español."
You'll find: Information in Spanish and in English on different emotional
disorders, as well as book and links to other organizations.
- Servicios de Salud Mental--Accesando la red de intercambio de conocimiento.
www.mentalhealth.org
The above link will take you to SAMHSA's National Mental Health Information
Center. To access materials in Spanish, you will need to scroll down on the
left menu bar to "Navigation" box and select (click on) "Español."
This will lead you to publications on mental health and child rearing and
to an (800) national information line.
- Spanish fact sheets on several mental disorders.
www.nimh.nih.gov/publicat/spanishpubs.cfm
The National Institute of Mental Health (NIMH) offers a variety of publications
in Spanish on emotional disturbances, including depression, schizophrenia,
anxiety disorders, panic disorder, AD/HD, obsessive-compulsive disorder, post-traumatic
stress disorder, and bipolar disorder.
- Information about mental health and behavior disorders.
www.nlm.nih.gov/medlineplus/spanish/mentalhealthandbehavior.html
Medline offers information in Spanish about AD/HD, eating disorders, and behavior
problems, as well as fact sheets about anxiety, depression, obsessive-compulsive
disorder, panic, phobias, Asperger's syndrome, and bipolar disorder.
- Information on depression, schizophrenia, and bipolar.
www.nmha.org/index.cfm
The National Mental Health Association (NMHA) offers for sale several publications
in Spanish, including: What is Depression?; Schizophrenia: What
You Need to Know; and Bipolar Disorder: What You Need to Know.
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Rare Syndromes
- NOAH: New York Online Access to Health.
www.noah-health.org/
NOAH offers visitors online access to full-text health information on syndromes
and rare disorders. To find this information in Spanish, select (click on)
"Temas de salud" on the home page.
- Genetics, birth defects, and the March of Dimes.
www.modimes.org/
On the March of Dimes home page, scroll to the bottom of the page and click
on "Español." This will lead you to information fact
sheets in Spanish on birth defects and genetics and to the Resource Center
that provides information and referral services to the public.
- National Institute of Neurological Disorders and Stroke (NINDS).
www.ninds.nih.gov
National Institute of Neurological Disorders and Stroke (NINDS) is part of
the National Institutes of Health (NIH). To find their Spanish materials,
visit the home page link provided above. On the top menu bar, select (click
on) "Disorders" and then "Publicaciones en español."
You'll find publications on such disorders as Ataxia, Cerebral Palsy, Hydrocephaly,
and Spina Bifida.
- Medline Plus in Spanish offers descriptions of many rare syndromes.
www.nlm.nih.gov/medlineplus/spanish/geneticsbirthdefects.html
At Medline, you'll find briefs on such general topics as Evaluation
and Genetic Tests (Asesoramiento y Pruebas Genéticas) and
a glossary of genetics terms. There are briefs on many specific syndromes,
including: Charcot-Marie-Tooth, Tay-Sachs, Huntington, Wilson, Prader-Willi,
Marfan, Turner, and Tourette.
- Organizations on rare syndromes/disorders outside the U.S.
The three organizations above are all within the continental United States.
Here are some links to organizations outside the U.S. offering information
on rare syndromes or disorders in Spanish.
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Rett Syndrome
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Special Health Care Needs
- Family Voices speaks for children with special health care needs.
www.familyvoices.org/
Family Voices is a national coalition concerned with the special health care
needs of children. To find information in Spanish on managed health care of
children with special health needs, look in Family Voice's catalog at: www.familyvoices.org/catalog.htm.
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Speech and Language Impairments
- Click the link below for a rich list of Spanish publications on cleft
palate.
www.cleftline.org/SPANISH/Publications/
Visit the Cleft Palate Foundation for many online materials in Spanish for
parents.
- Basic introductory materials about speech and language development.
www.asha.org
ASHA, the American Speech-Language-Hearing Association, offers Spanish versions
of several of its publications, including:
- Qué Tal Habla y Oye Su Niño? (How Well Does Your Child Hear and Talk?) gives parents an overview
of typical development of hearing and speech skills, and where to get
help for suspected problems or delays. Read online at: www.asha.org/public/speech/development/child_hear_talk.htm
- Informaciones del Habla y Audición (para Niños) (Children's
Speech and Hearing Packet), which includes the following publications:
La Identificación Temprana de los Retrasos y Desórdenes
del Habla y el Lenguaje; Qué es una Evaluación Audiológica?;
Actividades Para Estimular el Desarrollo del Habla y el Lenguaje; Preguntas
y Repuestas Sobre el Lenguaje Infantil; Los Problemas de Articulación;
Otitis Media La Audición, y el Desarrollo del Lenguaje; Qué
Tal Habla y Oye Su Niño?; Tratamiento Para Los Trastornos de Audición;
Tratamiento Para Los Trastornos del Habla y Lenguaje
ASHA also offers guidance on children and bilingualism, on serving a multicultural
population, and on what's normal and what's not when an individual is learning
English as a second language. These latter publications are available in English
only.
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What about Other Conditions?
A few quick links...
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What's Next from NICHCY?
You tell us! What "Information in Spanish on Disability Conditions"
are you looking for that you didn't find here? Drop us a line at: nichcy@aed.org
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This information is copyright free.
Readers are encouraged to copy and share it, but please credit the National
Dissemination Center for Children with Disabilities (NICHCY).
|
NICHCY Connections pages are
published in response to questions from individuals and organizations that
contact us. We encourage you to share your
ideas and feedback with us!
Project Director: Suzanne Ripley
Editor: Lisa Küpper
Authors: Yojanna Cuenca, Sonia Arellano, & Lisa Küpper
NICHCY thanks our Project Officer, Dr. Peggy Cvach, at the Office of Special
Education Programs (OSEP), U.S. Department of Education. |
| Publication of
this Web resource page is made possible through Cooperative Agreement #H326N030003
between the Academy for Educational Development and the Office of Special
Education Programs of the U.S. Department of Education. The contents of
this document do not necessarily reflect the views or policies of the Department
of Education, nor does mention of trade names, commercial products, or organizations
imply endorsement by the U.S. Government. |
NICHCY
P.O. Box 1492
Washington, DC 20013
(800) 695-0285 · v/tty
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