Delaware State Resources

Table of Contents

 
State Agencies
Disability Organizations
Parent Organizations
Other Organizations

Complete update · 4/2007
Partial update · 2/25/2008

The offices listed on this state sheet are primarily state-level offices. Even if an office is not close to your home, they can usually put you in touch with resources in your community, as well as provide you with information and assistance about disability issues in your state. If you find that an address or number has changed or is incorrect, please e-mail us at nichcy@aed.org and let us know.




State Agencies and Organizations




United States Senators
Honorable Thomas Carper (D)
513 Hart Office Building
Washington, DC 20510
(202) 224-2441
(202) 228-2190 (Fax)
E-mail Web Form: http://carper.senate.gov/aemail.htm
Web: http://carper.senate.gov

Honorable Joseph R. Biden, Jr. (D)
201 Russell Office Building
Washington, DC 20510
(202) 224-5042
(202) 224-0139 (Fax)
E-mail Web Form: http://biden.senate.gov/contact/emailjoe.cfm
Web: http://biden.senate.gov

United States Representatives
To find the contact information for your representative in the House of the U.S. Congress, visit the House’s Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY).

Governor
Honorable Ruth Ann Minner
Tatnall Building
William Penn Street, 2nd Floor
Dover, DE 19901
(302) 744-4101 (Dover)
(302) 577-3210 (Wilmington)
E-mail Web Form: www.state.de.us/governor/comments.shtml
Web: www.state.de.us/governor

Official State Web Site
Web: www.de.gov/

State Department of Education: Special Education
Martha Toomey, Director
Exceptional Children and Early Childhood Group
401 Federal Street, Suite 2
Dover, DE 19901-3639
(302) 739-5471
E-mail: mtoomey@doe.k12.de.us
Web: www.doe.state.de.us/Exceptional_Child/ececehome.htm

State Coordinator for NCLB (No Child Left Behind)
Nancy Wilson, Ph.D., Deputy Secretary of Education
Delaware Department of Education
401 Federal Street, Suite 2
Dover, DE 19901
(302) 735-4003
E-mail: nwilson@doe.k12.de.us
Web: www.doe.k12.de.us

Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Rosanne Griff-Cabelli, Part C Coordinator
Division of Management Services
Department of Health and Social Services
Main Administration Building
1901 N. DuPont Highway
New Castle, DE 19720
(302) 255-9135
E-mail: rosanne.griff-cabelli@state.de.us
Web: www.state.de.us/dhss/dms/epqc/birth3/directry.html

Programs for Children with Disabilities: Ages 3 through 5
James Lesko, Ed.D., 619 Coordinator
Exceptional Children and Early Childhood Group
Department of Education
401 Federal Street, Suite 2
Dover, DE 19901-3639
(302) 739-4210
E-mail: jlesko@doe.k12.de.us
Web: www.doe.state.de.us/programs/specialed

State Division of Vocational Rehabilitation
Andrea S. Guest, Director
Delaware Division of Vocational Rehabilitation
4425 N. Market Street
P. O. Box 9969
Wilmington, DE 19809-0969
(302) 761-8275; (302) 761-8336 (TTY)
E-mail: andrea.guest@state.de.us
Web: www.delawareworks.com/dvr/welcome.shtml

Coordinator for Transition Services
Mark Chamberlin, Education Associate
Delaware Department of Public Instruction
Secondary Transition
401 Federal Street Suite 2, Townsend Building
P.O. Box 1402
Dover, DE 19901
(302) 735-4242
E-mail: mchamberlin@doe.k12.de.us
Web: www.doe.state.de.us/

Office of State Coordinator of Vocational Education for Students with Disabilities
Adam W. Fisher, Ph.D., Education Associate
Part B IDEA Funds
Exceptional Children and Early Childhood Group
Department of Education
401 Federal Street, Suite 2, Townsend Building
Dover, DE 19901
(302) 735-4210
E-mail: afisher@doe.k12.de.us
Web: www.doe.state.de.us/Exceptional_Child/ececehome.htm

State Mental Health Agency
Renata J. Henry, Director
Division of Substance Abuse and Mental Health
Delaware Health and Social Services
Main Administration Building
1901 N. DuPont Highway
New Castle, DE 19720
(302) 255-9398
E-mail: Renata.Henry@state.de.us

State Mental Health Representative for Children
Susan Cycyk, Director
Division of Child Mental Health Services
Department of Services for Children, Youth, and Their Families
1825 Faulkland Road, Building 1
Wilmington, DE 19805-1195
(302) 633-2600
E-mail: cmh.dscyf@state.de.us
Web: http://kids.delaware.gov/cmhs/cmhs.shtml

Programs for People with Developmental Disabilities
Marianne Smith, Director
Division of Developmental Disabilities Services
Delaware Health and Social Services
1056 S. Governors Avenue, Suite 101
Dover, DE 19904
(302) 744-9600
E-mail: dhssinfo@state.de.us
Web: www.state.de.us/dhss/ddds/index.html

Councils on Developmental Disabilities
Patricia L. Maichle, Director
Delaware Developmental Disabilities Council
Margaret M. O'Neill Building, 2nd Floor
410 Federal Street, Suite 2
Dover, DE 19904
(302) 739-3333
E-mail: pat.maichle@state.de.us
Web: www.state.de.us/ddc

Protection and Advocacy Agency
Brian Hartman, Program Director
Disabilities Law Program
Community Service Building
100 W. 10th Street, Suite 801
Wilmington, DE 19801
(302) 575-0660; (302) 575-0696 (TTY)
(800) 292-7980 (in DE)
Web: www.declasi.org

Client Assistance Program
Melissa Shahan, Director
Client Assistance Program, United Cerebral Palsy, Inc.
254 E. Camden-Wyoming Avenue
Camden, DE 19934
(302) 698-9336; (302) 698-9336
E-mail: capucp@magpage.com

Programs for Children with Special Health Care Needs
Lora M. Lewis, Director
Children with Special Health Care Needs
Family Health Services
Division of Public Health
417 Federal Street
Dover, DE 19901
(302) 741-2980; (800) 464-4357 (Helpline)
E-mail: lora.lewis@state.de.us

Marie Renzi, MSN, RN/EMS for Children Program Manager
Division of Public Health & duPont Hospital for Children
Office of EMS
Blue Hen Corporate Center
655 Bay Road, Suite 4H
Dover, DE 19901
(302) 744-5410
E-mail: marie.renzi@state.de.us

Beth Appenzeller MacDonald, Special Needs Alert Program (SNAP) Coordinator
Office of EMS
Blue Hen Corporate Center
655 Bay Road, Suite 4H
Dover, DE 19901
(302) 744-5415
E-mail: beth.macdonald@state.de.us
Web: www.familyvoices.org/states.php?state=DE

State CHIP Program
(health care for low-income uninsured children)
Delaware Healthy Children Program
P.O. Box 950
New Castle, DE 19720-9914
(800) 996-9969
Web: www.state.de.us/dhss/dss/

Programs for Children and Youth who are Blind or Visually Impaired
Cynthia Lovell, Director
Division for the Visually Impaired
1901 N. Dupont Highway, Biggs Building
New Castle, DE 19720
(302) 255-9800
E-mail: cynthia.lovell@state.de.us
Web: www.dhss.delaware.gov/dhss/dvi/about.html

Programs for People who are Deaf or Hard of Hearing
Loretta Sarro, Public Information Officer
Delaware Office for the Deaf and Hard of Hearing
Division of Vocational Rehabilitation
4425 N. Market Street
Wilmington, DE 19802-1307
(302) 761-8275 (V/TTY); (302) 769-9821 (TTY)
E-mail: Loretta.Sarro@state.de.us
Web: www.delawareworks.com/dvr/services/dodhh.shtml

Telecommunications Relay Services for Individuals who are Deaf, Hard of Hearing, or with Speech Impairments
(800) 232-5470 (V)
(800) 232-5460 (TTY); 711 (TTY)
(800) 229-5746 (Speech to Speech - English)
(866) 260-9470 (Speech to Speech - Spanish)

Programs for Children and Youth who are Deaf-Blind
Peggy Lashbrook, Coordinator
Delaware Program for Deaf-blind Children
620 E. Chestnut Hill Road
Newark, DE 19713
(302) 454-2305

State Education Agency Rural Representative
Contact State Department of Education: Special Education listed above

Regional ADA Technical Assistance Center
Marian Vessels, Director
DBTAC: Mid-Atlantic ADA Center
TransCen, Inc.
451 Hungerford Drive, Suite 700
Rockville, MD 20850
(301) 217-0124 (V/TTY)
(800) 949-4232 (V/TTY DC, DE, MD, PA, VA, WV)
E-mail: adainfo@transcen.org
Web: www.adainfo.org

Other State Agencies for Persons with Disabilities
Kyle Hodges
State Council for Persons with Disabilities
Margaret M. O’Neill Building
P.O. Box 1401
Dover, DE 19903
Web: www2.state.de.us/scpd

Wendy Strauss, Executive Administrator
Governor’s Advisory Council for Exceptional Citizens (GACEC)
516 W. Loockerman Street
Dover, DE 19904
(302) 739-4553
E-mail: wstrauss@gacec.k12.de.us
Web: www.state.de.us/gacec/index.htm

University Centers for Excellence in Developmental Disabilities
Michael Gamel-McCormick, Director
University of Delaware
Center for Disabilities Studies
461 Wyoming Road
Newark, DE 19716
(302) 831-6974; (302) 831-4689 (TTY)
E-mail: ud-cds@udel.edu
Web: www.udel.edu/cds

Technology-Related Assistance
Beth A. Mineo Mollica, Director
Delaware Assistive Technology Initiative
University of DE/Alfred I. duPont Hospital for Children
P.O. Box 269
1600 Rockland Road, Room 200
Wilmington, DE 19899
(302) 651-6790; (302) 651-6794 (TTY)
(800) 870-3284 (in DE)
E-mail: dati@asel.udel.edu
Web: www.dati.org

State Mediation System
Louann Vari, Coordinator
Exceptional Children and Early Childhood Education Group
Department of Education
401 Federal Street, Suite 2
Dover, DE 19901-3639
(302) 735-4226
E-mail: lvari@doe.k12.de.us
Web: www.doe.state.de.us

Special Format Library
John Phillos, Librarian
Delaware Division of Libraries
Library for the Blind and Physically Handicapped
43 S. DuPont Highway
Dover, DE 19901
(302) 739-4748; (V/TTY)(800) 282-8676
E-mail: john.phillos@state.de.us
E-mail: debph@lib.de.us
Web: www.state.lib.de.us




Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464
(484) 945-2101
Web: www.add.org

Autism
Theda M. Ellis, Executive Director
Autism Society of Delaware
5572 Kirkwood Highway
Wilmington, DE 19808
(302) 472-2638
E-mail: theda.ellis@delautism.org
Web: www.delautism.org

Blind/Visual Impairments
Jaclyn Packer, Ph.D., Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (800) 232-5463
E-mail: afbinfo@afb.net
Web: www.afb.org

Brain Injury
James Burcham, Executive Director
Brain Injury Association of Delaware
32 W. Loockerman Street, Suite 103
Dover, DE 19904
(302) 346-2083; (800) 411-0505
E-mail: biadresourcecenter@cavtel.net

Cerebral Palsy
William J. McCool III, Statewide Executive Director
United Cerebral Palsy of Delaware
700 A River Road
Wilmington, DE 19809
(302) 764-2400
E-mail: wmccool@ucpde.org

Carma Carpenter, Director
United Cerebral Palsy of Delaware -- Kent/Sussex County Branch
3249 Midstate Road
Felton, DE 19943
(302) 335-5626
E-mail: carpent487@aol.com

Epilepsy
Barbara H. Blair, RN, Executive Director
Epilepsy Foundation of Delaware
Tower Office Park
240 N. James Street, Suite 208
Newport, DE 19804
(302) 999-9313; (800) 422-3653
E-mail: efd@efde.org
Web: http://epilepsyfoundation.org/delaware

Intellectual and Developmental Disabilities
Rita Landgraf, Acting Executive Director
The Arc of Delaware
1016 Centre Road
Wilmington, DE 19805-1234
(302) 996-9400
Web: www.arcde.org

Mental Health
James Lafferty, Executive Director
Mental Health Association in Delaware
100 W. 10th Street, Suite 600
Wilmington, DE 19801
(302) 654-6833; (800) 287-6423 (In DE)
E-mail: info@mhainde.org
Web: www.mhainde.org

Rita A. Marocco, Executive Director
NAMI-Delaware
2400 W. 4th Street
Wilmington, DE 19805
(302) 427-0787
E-mail: rmarocco@namide.org
E-mail: NAMIDE@aol.com
Web: www.namide.org

Speech, Language, and Hearing
Kristen M. Palmer, President
Delaware Speech-Language-Hearing Association
P.O. Box 7383
Newark, Delaware 19711
E-mail: dshaweb@dshaweb.org

Special Health Care Needs
Beth A. MacDonald, State Coordinator
Delaware Family Voices
2340 Alamo, S.E., Suite 102
Albuquerque, NM 87106
(505) 872-4774; (888) 835-5669
Email: bmacdonfv@juno.com
Web: www.familyvoices.org/

Tourette Syndrome
Tourette Syndrome Association, Inc.
42-40 Bell Boulevard
Bayside, NY 11361-2820
(718) 224-2999
E-mail: ts@tsa-usa.org
Web: www.tsa-usa.org





Organizations Especially for Parents

Parent Training and Information Center (PTI)
Marie-Anne Aghazadian, Executive Director
Parent Information Center of Delaware, Inc. (PIC)
5570 Kirkwood Highway
Wilmington, DE 19808
(302) 999-7394; (888) 547-4412
E-mail: picofdel@picofdel.org
Web: www.picofdel.org

Parent-To-Parent
Contact Parent Training and Information Center listed above

Partners in Policymaking
Al Rose, Coordinator
Deanna Greene, Coordinator
Partners in Policymaking of Delaware
Developmental Disabilities Council
Margaret M. O'Neill Building, 2nd Floor
410 Federal Street, Suite 2
Dover, DE 19901
(302) 739-7192
Web: www.state.de.us/ddc

Parent Teacher Association (PTA)
Charles Mullin, President
Delaware Congress of Parents and Teachers
925 Bear-Corbitt Road, Suite 101
Bear, DE 19701
(302) 838-8770
E-mail: de_office@pta.org
Web: www.delawarepta.org




Other Disability Organizations

(Providing patient care, education and research for children birth through 17 with acute, chronic, and complex health problems.)
Alfred I. duPont Hospital for Children
1600 Rockland Road
P.O. Box 269
Wilmington, DE 19899
(302) 651-4000; (888) 533-3543
E-mail:
InfoduPont@nemours.org
Web: www.nemours.org/internet?cat=l

Richard Hofmann, Executive Director
American Amputee Soccer Association
1033 Creekside Drive
Wilmington, DE 19804
(302) 683-0997
E-mail: rgh@ampsoccer.org
Web: www.ampsoccer.org

Beth A. MacDonald, Project Coordinator
Delawareans with Special Needs: Medicaid Managed Care Panel
35 W. Fairfield Drive
Dover, DE 19901
(302) 697-1976
E-mail: bmacdonfv@juno.com

Sandra Tuttle, President/CEO
Easter Seals Delaware and Maryland's Eastern Shore
61 Corporate Circle
New Castle, DE 19720
(302) 324-4444; (800) 677-3800
E-mail: stuttle@esdel.org
Web: www.de.easterseals.com

Arnetta Woodson, Project Coordinator
Delawareans with Special Needs: Medicaid Managed Care Panel
35 W. Fairfield Drive
Dover, DE 19901
(302) 697-1976
E-mail: woodson@email.chop.edu
Web: www.dhss.delaware.gov/dhss/dms/epqc/birth3/directry.html

MENTOR ABI Group - New Jersey
Rehabilitative and Support Services for Persons with Acquired Brain Injury
505 S. Lenola Road
Blason Office Plaza II, Suite 217
Moorestown, NJ 08057
(856) 235-5505
Web: http://nj.thementornetwork.com/state/index.asp

Michelle Sobczyk, Patient Services Manager
The Leukemia & Lymphoma Society
Delaware Chapter
100 W. 10th Street, Suite 209
Wilmington, DE 19801
(302) 661-7300, ext. 25; (800) 220-1617
E-mail: michelle.sobczyk@lls.org
Web: www.ils.org

Jennifer Gunther, Executive Director
VSA arts of Delaware
Art Center Gallery, Deleware State University
1200 N. Dupont Highway
Dover, DE 19901
(302) 857-6699
E-mail: jgunther@dsc.edu

Independent Living

To find out the contact information for the Statewide
Independent Living Council (SILC) in your state, contact:

Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232 (V); (713) 520-5136 (TTY)
E-mail: ilru@ilru.org
Web: www.ilru.org

To find out the contact information for centers for
independent living (CILs) in your state, contact:

National Council on Independent Living
1710 Rhode Island Avenue, NW, 5th Floor
Washington, DC 20036
(202) 207-0334 (V); (202) 207-0340 (TTY)
E-mail: ncil@ncil.org
Web: www.ncil.org






Publication of this document is made possible through a Cooperative Agreement between the Academy for Educational Development and the Office of Special Education Programs of the U.S. Department of Education. The contents of this document do not necessarily reflect the views or policies of the Department of Education, nor does mention of trade names, commercial products, or organizations imply endorsement by the U.S. Government.