A publication of the National Dissemination Center for Children with Disabilities

Missouri State Resources

Complete update · 8/2007
Partial update · 1/3/2008

The offices listed on this state sheet are primarily state-level offices. Even if an office is not close to your home, they can usually put you in touch with resources in your community, as well as provide you with information and assistance about disability issues in your state. If you find that an address or number has changed or is incorrect, please e-mail us at nichcy@aed.org and let us know.

State Agencies and Organizations

Age of Eligibility

Each state sets eligibility ages for services to children and youth with disabilities. For current information concerning this state, please contact the office listed under Department of Education: Special Education.

United States Senators
Honorable Christopher Bond (R)
274 Russell Senate Office Building
Washington, DC 20510
(202) 224-5721; (202) 224-9901 (TTY)
(202) 224-8149 (Fax)
E-mail Web Form: http://bond.senate.gov/contact/contactme.cfm
Web: http://bond.senate.gov

Honorable Claire McCaskill (D)
SH-717 Hart Senate Office Building
Washington, DC 20510
(202) 224-6326
(202) 228-1518 (Fax)
E-mail Web Form: http://mccaskill.senate.gov/contact.cfm
Web: http://mccaskill.senate.gov/

United States Representatives
To find the contact information for your representative in the House of the U.S. Congress, visit the House’s Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY).

Governor
Honorable Matt Blunt
Office of the Governor
Room 216, State Capitol Building
Jefferson City, MO 65101
(573) 751-3222
E-mail Web Form: www.gov.mo.gov/constituentform.htm
Web: www.gov.mo.gov/index.htm

Official State Web Site
Web: www.state.mo.us/

State Department of Education: Special Education
Heidi Atkins Lieberman, Assistant Commissioner
Division of Special Education
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 751-4444
E-mail: heidi.atkinslieberman@dese.mo.gov
Web: www.dese.mo.gov/divspeced/

State Coordinator for NCLB (No Child Left Behind)
Becky Kemna, Coordinator of Federal Programs, Early Childhood, School Improvement, and Accreditation
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 751-4104
E-mail: becky.kemna@dese.mo.gov
Web: www.dese.mo.gov

Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Joyce Jackman, Coordinator
Special Education Services
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 522-8762; (866) 583-2392 (First Steps)
E-mail: joyce.jackman@dese.mo.gov
Web: www.dese.mo.gov/divspeced/

Programs for Children with Disabilities: Ages 3 through 5
Margaret Strecker, Director
Special Education Compliance Section
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 751-0699
E-mail: margaret.strecker@dese.mo.gov
Web: www.dese.mo.gov/divspeced/

State Vocational Rehabilitation Agency
Jeanne Loyd, Assistant Commissioner
Division of Vocational Rehabilitation
Department of Education
3024 Dupont Circle
Jefferson City, MO 65109-0525
(573) 751-3251
Web: www.vr.dese.mo.gov

Coordinator for Transition Services
Barb Gilpin, Assistant Director
Special Education Effective Practices Section
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102-0480
(573) 751-7661
E-mail: barb.gilpin@dese.mo.gov
Web: www.dese.mo.gov

Office of State Coordinator of Vocational Education for Students with Disabilities
Shawn Brice, Director
Career Education Special Needs
Civil Rights Compliance and Title IX Coordinator
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 522-1775
E-mail: shawn.brice@dese.mo.gov
Web: www.dese.mo.gov/divcareered/civil_rights_compliance.htm

State Mental Health Agency
Dr. Keith Schafer, Director
Department of Mental Health
1706 East Elm
P.O. Box 687
Jefferson City, MO 65102
(573) 751-3070; (800) 364-9687
Web: www.dmh.mo.gov

State Mental Health Representative for Children and Youth
Patricia Carter, Ph.D., Clinical Director
Missouri Department of Mental Health
P.O. Box 687
Jefferson City, MO 65102
(573) 751-0142
E-mail: patsy.carter@dmh.mo.gov
Web: www.dmh.mo.gov

Programs for People with Developmental Disabilities
Bernie Simons, Division Director
Division of Mental Retardation and Developmental Disabilities
1706 E. Elm
P.O. Box 687
Jefferson City, MO 65102
(573) 751-8676; (800) 207-9329
Web: www.dmh.mo.gov

Councils on Developmental Disabilities
Susan Pritchard-Green, Director
Missouri Planning Council for Developmental Disabilities
1706 E. Elm
P.O. Box 687
Jefferson City, MO 65102
(573) 751-8611; (800) 500-7878
E-mail: susan.pritchard-green@dmh.mo.gov
Web: www.mpcdd.com

Protection and Advocacy Agency
Shawn de Loyola, Executive Director
Missouri Protection and Advocacy Services
925 S. Country Club Drive
Jefferson City, MO 65109
(573) 659-0678; (800) 392-8667
E-mail: mopasjc@earthlink.com
Web: www.moadvocacy.org

Client Assistance Program
Contact Protection and Advocacy Agency listed above

Programs for Children with Special Health Care Needs
Gary Harbison, Chief
Special Health Care Needs
Department of Health and Senior Services
930 Wildwood Drive
P.O. Box 570
Jefferson City, MO 65102
(573) 751-6246; (800) 451-0669
Web: www.dhss.mo.gov

State CHIP Program
(health care for low-income uninsured children)
MC+ for Children
Missouri Department of Social Services
(888) 275-5908
Web: www.dss.state.mo.us/mcplus/index.htm

Programs for Children and Youth who are Blind or Visually Impaired or Deaf-Blind
Mark Laird, Acting Deputy Director
Rehabilitation Services for the Blind
Family Support Division
615 Howerton Court
P.O. Box 2320
Jefferson City, MO 65102-2320
(573) 751-4249; (800) 592-6004
E-mail: janice.m.phillips@dss.mo.gov
Web: www.dss.mo.gov/fsd/rsb/index.htm

Missouri School for the Blind
3815 Magnolia Avenue
St. Louis, MO 63110
(314) 776-4320; (800) 622-5672
Web: www.msb.k12.mo.us

Programs for Children and Youth who are Deaf or Hard of Hearing
Dr. Roy E. Miller, Executive Director
Missouri Commission for the Deaf and Hard of Hearing
1103 Rear Southwest Boulevard
Jefferson City, MO 65109
(573) 526-5205 (V/TTY)
E-mail: mcdhh@mcdhh.mo.gov
Web: www.mcdhh.mo.gov

Barbara Garrison, Superintendent
Missouri School for the Deaf
505 E. 5th Street
Fulton, MO 65251-1799
(573) 592-4000
Web: www.msd.k12.mo.us

Telecommunications Relay Services for Individuals who are Deaf, Hard of Hearing, or with Speech Impairments
(800) 735-2466 (V)
(800) 735-2966 (TTY); 711 (TTY)
(877) 735-7877 (Speech to Speech)

Regional ADA & IT Technical Assistance Center
Jim de Jong, Director
ADA and I.T. Center
DBTAC - Great Plains ADA Center
University of Missouri/Columbia
100 Corporate Lake Drive
Columbia, MO 65203
(573) 882-3600 (V/TTY); (800) 949-4232 (V/TTY)
E-mail: ada@missouri.edu
Web: www.adaproject.org

University Centers for Excellence in Developmental Disabilities
Carl F. Calkins, Director
UMKC Institute for Human Development
Health Sciences Building
2220 Holmes Street, 3rd Floor
Kansas City, MO 64108
(816) 235-1770; (800) 444-0821 (V)
(800) 452-1185 (TTY)
Web: www.ihd.umkc.edu

Jenny Hatfield-Reed
Missouri Developmental Disability Resource Center (MODDRC)
UMKC Institute for Human Development
A University Center for Excellence in Developmental Disabilities
2220 Holmes, 3rd Floor
Kansas City, MO 64108
(800) 444-0821
E-mail: moddrc@umkc.edu
Web: www.moddrc.org

Technology-Related Assistance
Diane Golden, Project Director
Missouri Assistive Technology
4731 South Cochise, Suite 114
Independence, MO 64055-6975
(816) 373-5193; (800) 647-8557
E-mail: matpmo@swbell.net
Web: www.at.mo.gov

State Mediation System
Margaret Strecker, Director
Special Education Compliance
Missouri Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 751-4909
E-mail: margaret.strecker@dese.mo.gov
Web: www.dese.mo.gov/divspeced/

Special Format Library
Dr. Richard Smith, Librarian
Wolfner Library for the Blind and Physically Handicapped
P.O. Box 387
Jefferson City, MO 65102-0387
(573) 751-8720; (800) 392-2614 (in MO)
(800) 347-1379 (TTY/ in MO)
E-mail: wolfner@sos.mo.gov
Web: www.sos.mo.gov/wolfner/

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464-0543
(484) 945-2101
Web: www.add.org

Autism
Autism Alliance of Greater Kansas City
P.O. Box 45664
Kansas City, MO 64171
(816) 842-2452
Email: robin@autismalliancekc.org
Web: www.autismalliancekc.org
Web: www.kcautismservices.com

Debra Fiasco, Director of Autism and Children's Services
Division of Mental Retardation and Developmental Disabilities
1706 E. Elm
P. O. Box 687
Jefferson City, MO 65102
(573) 751-4054; (800) 364-9687
E-mail: debra.fiasco@dmh.mo.gov
Web: http://missouri.networkofcare.org

Blind/Visual Impairments
Jaclyn Packer, Ph.D., Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (800) 232-5463
E-mail: afbinfo@afb.net
Web: www.afb.org

Brain Injury
Scott Gee, Executive Director
Brain Injury Association of Missouri
10270 Page Avenue, Suite 100
St. Louis, MO 63132
(314) 426-4024; (800) 377-6442
E-mail: info@biamo.org
Web: www.biamo.org

Lori Brenneke, Adult Head Injury Program Manager
Missouri Department of Health and Senior Services
Division of Community & Public Health
Special Health Care Needs
930 Wildwood
Jefferson City, MO 65102
(573) 751-6246
E-mail: info@dhss.mo.gov
Web: www.dhss.mo.gov/SHCN/HeadInjury

Cerebral Palsy
Richard Forkosh, Executive Director
United Cerebral Palsy Association of Greater St. Louis
8645 Old Bonhomme Road
St. Louis, MO 63132-3999
(314) 994-1600
E-mail: forkoshr@ucpstl.org
Web: www.ucpa.org

Epilepsy
Darla Templeton, Executive Vice President
Epilepsy Foundation of the St. Louis Region
7100 Oakland Avenue
St. Louis, MO 63117
(314) 645-6969; (800) 264-6970
E-mail: darla@stl-epil.org
Web: www.stl-epil.org

Learning Disabilities
Glenda Buck, Office Administrator
Learning Disabilities Association of Missouri
P.O. Box 3303
Springfield, MO 65808-3303
(417) 864-5110; (800) 473-4965
E-mail: ldamo@cland.net
Web: www.ldamo.org

Mental Health
James House, Executive Director
Mental Health Association of Greater St. Louis
1905 S. Grand Boulevard
St. Louis, MO 63104-1542
(314) 773-1399
E-mail: housejeh@aol.com
E-mail: mhagstl@aol.com
Web: www.mhagstl.org

Cindi Keele, Executive Director
Ruth Thompson, Family Services Coordinator
National Alliance on Mental Illness Missouri
1001 Southwest Boulevard, Suite E
Jefferson City, MO 65109
(573) 634-7727; (800) 374-2138
E-mail: namimockj@aol.com
E-mail: namimochildren@aol.com

Special Health Care Needs
Carla Sandwell, Executive Director
Family Voices of Missouri, Inc.
811 N. Fremont Avenue
Springfield, MO 65802
(417) 619-2609
E-mail: fvmo@mchsi.com
Web: www.familyvoices.org/states.php?state=mo

Speech, Language, and Hearing
Missouri Speech-Language-Hearing Association
Central Office
2000 E. Broadway, PMB-296
Columbia, MO 65201
(888) 729-6742
E-mail: msha@showmemsha.org
Web: www.showmemsha.org

Spina Bifida
Mark Abbott, Chairperson
Spina Bifida Association of Greater St. Louis
8050 Watson Road, Suite 115
St. Louis, MO 63119
(314) 843-2244; (800) 784-0983
E-mail: sbastl@charter.net
Web: www.sbastl.com

Tourette Syndrome
Tourette Syndrome Association, Inc.
42-40 Bell Boulevard
Bayside, NY 11361-2820
(718) 224-2999
E-mail: ts@tsa-usa.org
Web: www.tsa-usa.org

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Mary Kay Savage, Executive Director
Missouri Parents Act (MPACT)
8301 State Line Road, Suite 204
Kansas City, MO 64114
(816) 531-7070; (800) 743-7634 (V/TTY)
E-mail: msavage@ptimpact.com
Web: www.ptimpact.com

Parent-To-Parent
Jane St. John, Parent to Parent/Peer Support Specialist
Sharing Our Strengths
(a program of the Missouri Developmental Disability Resource Center)
UMKC Institute for Human Development
A University Center for Excellence in Developmental Disabilities
2220 Holmes
Kansas City, MO 64108
(800) 773-8652
E-mail: stjohnj@UMKC.edu
Web: www.sharingourstrengths.com

Partners in Policymaking
Susan Pritchard-Green, Executive Director
Missouri Planning Council for Developmental Disabilities
P.O. Box 687
Jefferson City, MO 65102
(573) 751-8611; (800) 500-7878 (in MO)
E-mail: susan.pritchard-green@dmh.mo.gov
Web: www.mpcdd.com

Parent Teacher Association (PTA)
Kathy Nevans, President
Missouri Congress of Parents and Teachers
2100 I-70 Drive, S.W.
Columbia, MO 65203
(573) 445-4161; (800) 328-7330
E-mail: office@mopta.org
Web: www.mopta.org

Other Parent Organization
Jayna Slade, Project Coordinator
Special Health Care Needs Family Partnership
c/o Miller County Health Center
P.O. Box 2
Tuscumbia, MO 65082
(573) 369-2359; (866) 809-2400
E-mail: sladej@lpha.dhss.mo.gov
Web: www.dhss.mo.gov/FamilyPartnership

Other Disability Organizations

Craig Byrd, CEO
Easter Seals Missouri, Inc.
13975 Manchester Road
Manchester, MO 63011
(636) 779-2299
E-mail: cbyrd@mo.easterseals.com
Web: www.mo.easterseals.com

Fred Berry, President
AbilityArts
PO Box 1763
Columbia, MO 65205
(573) 875-2782; (866) 872-2787
E-mail: director@abilityarts.org
Web: www.abilityarts.org

Independent Living

To find out the contact information for the Statewide
Independent Living Council (SILC) in your state, contact:
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232 (V); (713) 520-5136 (TTY)
E-mail: ilru@ilru.org
Web: www.ilru.org

To find out the contact information for centers for
independent living (CILs) in your state, contact:
National Council on Independent Living
1710 Rhode Island Avenue, NW, 5th Floor
Washington, DC 20036
(202) 207-0034 (V); (202) 207-0340 (TTY)
E-mail: ncil@ncil.org
Web: www.ncil.org

This information is copyright free. Readers are encouraged to copy and share it, but please credit the National Dissemination Center for Children with Disabilities (NICHCY).
NICHCY State Resources are listings of selected state-wide organizations that can refer people to organizations in their area. We update our state resources continuously; however, the addresses and telephone numbers of these selected groups are constantly changing. If you find that an address or number has changed or is incorrect, please e-mail us at nichcy@aed.org and let us know.
Publication of this document is made possible through a Cooperative Agreement between the Academy for Educational Development and the Office of Special Education Programs of the U.S. Department of Education. The contents of this document do not necessarily reflect the views or policies of the Department of Education, nor does mention of trade names, commercial products, or organizations imply endorsement by the U.S. Government.	NICHCY P.O. Box 1492 Washington, DC 20013 (800) 695-0285 · v/tty (202) 884-8441 · fax e-mail: nichcy@aed.org web: www.nichcy.org